PANS/PANDAS STORIES

PANS/PANDAS STORIES

Welcome to The PANS/PANDAS Stories. In the first series, actor and charity campaigner Jo Joyner, and child counsellor and journalist, Lucy McDonald, meet children and families affected by this neuropsychiatric disorder. They also interview experts at the cutting edge of treatment. Awareness is growing, and the pair hope this podcast will offer hope and support to sufferers as they navigate an often long and complicated road to recovery. Disclaimer - Episodes can contain upsetting themes. It does not replace medical advice.

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Episoder(24)

Our Journey to a PANDAS Diagnosis | A Parent’s Story from Instagram's Parenting_PANDAS

Our Journey to a PANDAS Diagnosis | A Parent’s Story from Instagram's Parenting_PANDAS

In the last episode of the year, we talked to Lucy from Parenting_PANDAS on Instagram. Lucy shares her story with her 10,000-strong community, charting the hope and despair of life as a PANDAS parent....

19 Des 202437min

Lyme Disease, Infection and Long-Term Treatment in PANS/PANDAS

Lyme Disease, Infection and Long-Term Treatment in PANS/PANDAS

Dr Denis Bouboulis, an allergist and immunologist from the US, has been diagnosing and treating PANS PANDAS for nearly 20 years. He talks about the "wild card" of Covid and how Long Covid could be lin...

2 Des 202447min

Helping Children With PANS at School | Education Expert Tina Coope

Helping Children With PANS at School | Education Expert Tina Coope

Jo Joyner speaks to Education Expert Tina Coope from the UK charity about helping children at school. She has good tips about how to speak to schools and help teachers understand how to help these chi...

14 Nov 202430min

School Refusal, Pressure and PANS | Psychologist Naomi Fisher

School Refusal, Pressure and PANS | Psychologist Naomi Fisher

Brilliant chat with Naomi Fisher about low demand-parenting, how parents unwittingly create pressure for their children, how to choose the right school, how to collaborate when things go wrong, and wh...

3 Okt 202456min

Nutritionist Lucinda Miller on brain health, histamine, and the healing power of good food

Nutritionist Lucinda Miller on brain health, histamine, and the healing power of good food

Lucinda Miller is back to talk about her new book Brain Brilliance. It looks at how what you eat affects your health and mood. The book is described as a nutritional toolkit for neurodivergent kids, ...

20 Sep 202438min

How Parents Can Support Children With PANS/PANDAS | Therapist Julie Cox

How Parents Can Support Children With PANS/PANDAS | Therapist Julie Cox

Julie Cox is the mother of all PANS PANDAS therapists and she has been working with these children and families for the last 20 years after her daughter got the illness. She has poured her personal an...

5 Sep 202438min

Mould, Mycotoxins and PANS/PANDAS: Could Environment Trigger Symptoms?

Mould, Mycotoxins and PANS/PANDAS: Could Environment Trigger Symptoms?

Amy Joy Smith is a legend in the community, and one of the first practitioners to help children heal from PANS/PANDAS. She has helped hundreds of families, and her compassionate, rigorous approach ens...

2 Apr 202459min

Hidden Signs of Brain Inflammation in PANS | Dr Jennifer Frankovich

Hidden Signs of Brain Inflammation in PANS | Dr Jennifer Frankovich

Lucy McDonald here, This conversation was mind-blowing for me. I have long known of the rheumatologist Jennifer Frankovich's work, but in this chat, she taught me so much about PANS. Well specifally P...

26 Mar 202446min

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