PANS/PANDAS STORIES

PANS/PANDAS STORIES

Welcome to PANS/PANDAS Stories. Join Lucy McDonald as she talks to children and parents living with this misunderstood neuropsychiatric condition and to the experts dedicated to understanding and treating it. Awareness is growing, and this podcast hopes to grow it further. Real stories, honest conversations, and hope for anyone finding their way along the long and complicated road to recovery. Some episodes contain themes listeners may find upsetting. This podcast does not replace medical advice.

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Episoder(28)

Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

Michelle Newby thinks that Occupational Therapy should be the fourth pillar of PANS/PANDAS treatment, after controlling inflammation and infection and psychiatric and psychological help. She works clo...

28 Feb 46min

Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

"I want every single kid, every single teen, every single young adult, every single adult with PANS/PANDAS to realise what they are capable of because they are capable of so much more than their disor...

20 Feb 46min

Recovering From PANS/PANDAS: A Teenager’s Story of Hope

Recovering From PANS/PANDAS: A Teenager’s Story of Hope

In this episode of PansPandas Stories, host Lucy McDonald interviews Freya Shacklock, a 19-year-old who shares her inspiring journey of recovery from PANS-PANDAS, a condition that caused her severe me...

5 Des 202550min

PANS Flares, Medication and Recovery | Dr Kiki Chang

PANS Flares, Medication and Recovery | Dr Kiki Chang

It has been a while since the last PANS PANDAS Stories and our return is marked by an interesting chat with Dr Kiki Chang. He has a long PP pedigree and now works privately in the States where he has ...

17 Nov 202549min

Our Journey to a PANDAS Diagnosis | A Parent’s Story from Instagram's Parenting_PANDAS

Our Journey to a PANDAS Diagnosis | A Parent’s Story from Instagram's Parenting_PANDAS

In the last episode of the year, we talked to Lucy from Parenting_PANDAS on Instagram. Lucy shares her story with her 10,000-strong community, charting the hope and despair of life as a PANDAS parent....

19 Des 202437min

Lyme Disease, Infection and Long-Term Treatment in PANS/PANDAS

Lyme Disease, Infection and Long-Term Treatment in PANS/PANDAS

Dr Denis Bouboulis, an allergist and immunologist from the US, has been diagnosing and treating PANS PANDAS for nearly 20 years. He talks about the "wild card" of Covid and how Long Covid could be lin...

2 Des 202447min

Helping Children With PANS at School | Education Expert Tina Coope

Helping Children With PANS at School | Education Expert Tina Coope

Jo Joyner speaks to Education Expert Tina Coope from the UK charity about helping children at school. She has good tips about how to speak to schools and help teachers understand how to help these chi...

14 Nov 202430min

School Refusal, Pressure and PANS | Psychologist Naomi Fisher

School Refusal, Pressure and PANS | Psychologist Naomi Fisher

Brilliant chat with Naomi Fisher about low demand-parenting, how parents unwittingly create pressure for their children, how to choose the right school, how to collaborate when things go wrong, and wh...

3 Okt 202456min

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