SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Denne podkasten er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(445)

Stem Cell Therapy May Benefit Some Type 1 Infants & Disability Pride Month

Stem Cell Therapy May Benefit Some Type 1 Infants & Disability Pride Month

SMA News Today’s multimedia associate, Price Wooldridge, discusses a stem cell therapy which may benefit some Spinal Muscular Atrophy (SMA) Type 1 infants. Also, Kevin Schaefer shares his thoughts on...

14 Jul 20217min

People in UK Urged to Sign Petition Adding SMA to Newborn Screening

People in UK Urged to Sign Petition Adding SMA to Newborn Screening

SMA News Today’s multimedia associate, Price Wooldridge, discusses the UK SMA Newborn Screening Alliance calling on people to take action and sign a petition requesting Spinal Muscular Atrophy (SMA) b...

12 Jul 20218min

US Pediatricians Often Overlook Steps in Diagnosing SMA, Surveys Show

US Pediatricians Often Overlook Steps in Diagnosing SMA, Surveys Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses how many U.S. pediatricians fail to use developmental screening tools in diagnosing Spinal Muscular Atrophy (SMA). Plus, DeAnn Runge...

9 Jul 202114min

Texas Adds SMA to Its Newborn Screening Program

Texas Adds SMA to Its Newborn Screening Program

SMA News Today’s multimedia associate, Price Wooldridge, discusses Texas adding Spinal Muscular Atrophy (SMA) to its newborn screening program. Also, Forums Director Kevin Schaefer reads a column abo...

7 Jul 20217min

#85: Interview With Mikey and Noelle Hazel, Siblings with SMA

#85: Interview With Mikey and Noelle Hazel, Siblings with SMA

In episode 85, host Kevin Schaefer talks with Mikey and Noelle Hazel from Union, New Jersey. Mikey and Noelle are siblings who both have SMA Type II. They talk about growing up with SMA together, comb...

6 Jul 202156min

Japan Approves Evrysdi as First At-home, Oral SMA Treatment

Japan Approves Evrysdi as First At-home, Oral SMA Treatment

SMA News Today’s multimedia associate, Price Wooldridge, discusses Japan’s approval of Evrysdi as the first at-home, oral Spinal Muscular Atrophy (SMA) treatment. Also, DeAnn Runge talks about her qu...

5 Jul 20216min

Major Developmental Milestones Met in Infants, Zolgensma Data Show

Major Developmental Milestones Met in Infants, Zolgensma Data Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgensma treatment demonstrating major milestones being met in infants with Spinal Muscular Atrophy (SMA). Also, DeAnn shares with ...

2 Jul 202112min

Newborn Screening in Massachusetts Seen as Highly Accurate And Effective

Newborn Screening in Massachusetts Seen as Highly Accurate And Effective

SMA News Today’s multimedia associate, Price Wooldridge, discusses newborn screening for Spinal Muscular Atrophy (SMA) in Massachusetts being seen as highly accurate and effective. Forums Director Ke...

30 Jun 202110min

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