NICE Initially Against Adding Evrysdi to UK Public Health System
SMA News Today’s multimedia associate, Price Wooldridge, discusses England’s NICE recommending against adding Evrysdi to the UK’s Public Health System. Also, DeAnn Runge reads Katie Napiwocki’s recen...
14 Jun 202113min
SMA and Sibling Relationships: A Brother’s Perspective & Sticking With Evrysdi
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Halsey Blocher, From Where I Sit, “SMA and Sibling Relationships: My Brother’s Perspective”. Also, DeAnn Runge talks abou...
11 Jun 20216min
Asuragen’s Lab Test Can Speed Up Diagnosis of SMA Carriers and Patients
SMA News Today’s multimedia associate, Price Wooldridge, discusses Asuragen’s lab test which can speed up diagnosis of SMA carriers and patients. Also, Forums Director Kevin Schaefer reads a column f...
9 Jun 20219min
Stress-induced Protein May Serve as New SMA Biomarker in Infants
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a stress-induced protein may serve as a new Spinal Muscular Atrophy (SMA) biomarker in infants. Also, SMA News today brings a va...
7 Jun 20218min
Apitegromab, Muscle-directed Therapy for SMA, Put on FDA Fast Track
SMA News Today’s multimedia associate, Price Wooldridge, discusses Apitegromab being granted a fast track designation by the U.S. Food and Drug Administration. DeAnn Runge talks about her upcoming ap...
4 Jun 20216min
SMN2 Copy Number and Rare Variant Influence SMA Severity
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the SMN2 copy number and a rare genetic variant influence the severity of Spinal Muscular Atrophy (SMA). Also, Forums Director K...
2 Jun 202110min
#83: Interview with Christine Getman and Scottie Foertmeyer, Couple and Magic Wheelchair Executives
In episode 83, host Kevin Schaefer talks with Christine Getman and Scottie Foertmeyer from Portland, Oregon. Christine and Scottie are partners in life and in business, as they run the nonprofit Magic...
1 Jun 202152min
SMA May Carry Higher Risk of Fluid Buildup in The Brain & Reflections on Memorial Day
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy may carry a higher risk of fluid buildup in the brain. Also, DeAnn Runge shares her reflections on Memor...
31 Mai 20219min
