German Study Urges Newborn SMA Screening, Citing Better Outcomes & Managing Chaos
SMA News Today’s multimedia associate, Price Wooldridge, discusses a German study which recommends newborn screening for Spinal Muscular Atrophy (SMA), citing better outcomes. Also, Forums Director K...
12 Mai 20219min
Grant Awarded to Find Affordable Treatments for Children & SMA Would You Rather
SMA News Today’s multimedia associate, Price Wooldridge, discusses a grant awared to find affordable treatments for children with Spinal Muscular Atrophy (SMA). Also, on the forums a fun game of SMA ...
10 Mai 20215min
Novartis Poised for Phase 3b SMART Study of Zolgensma & SMA Adventures
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Novartis is poised for their Phase 3b SMART study of Zolgensma. Also, DeAnn Runge shares a recent adventure she went on to a gre...
7 Mai 20219min
Danish Family Races to Raise $2.4M for Daughter’s Zolgensma Therapy & Staying True To Yourself
SMA News Today’s multimedia associate, Price Wooldridge, discusses a Danish family raising $2.4 million for their daughter’s Zolgensma therapy. Also, Kevin Schaefer reads a column about staying true ...
5 Mai 202112min
#81: Interview With Chaz Hayden - Writer and YouTuber with SMA
In episode 81, host Kevin Schaefer talks with Chaz Hayden from Princeton, New Jersey. Chaz is a writer and YouTuber with SMA. He talks about growing up with SMA, starting college at a young age, and h...
4 Mai 202138min
#AANAM – Zolgensma May Lead to Faster, Greater Gains Than Spinraza
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma may lead to faster, greater gains than Spinraza in Spinal Muscular Atrophy (SMA) infants. Also, DeAnn Runge reads an a...
3 Mai 202111min
Neurofilaments Before Spinraza May Predict Motor Improvements & Reviewing The Sound of Metal
SMA News Today’s multimedia associate, Price Wooldridge, discusses neurofilaments, before beginning Spinraza, may predict motor improvements in children with Spinal Muscular Atrophy (SMA). Also, DeAn...
30 Apr 20219min
Health Canada Approves Evrysdi for At-home Treatment
SMA News Today’s multimedia associate, Price Wooldridge, discusses Health Canada’s approval of Evrysdi for at-home treatment in SMA patients. Also, Forums Director Kevin Schaefer reads a column by Ar...
28 Apr 20218min
