#79: Interview With Ainaa Farhanah, a Graphic Designer Living with SMA
In episode 79, host Kevin Schaefer talks with Ainaa Farhanah from Kuala Lumpur, Malaysia. Ainaa is a graphic designer and art teacher with SMA. She talks about growing up with SMA, family, college, an...
8 Apr 202126min
Scholar Rock Wins US Patent for Apitegromab & Receiving The COVID-19 Vaccine And Getting Outside
SMA News Today’s multimedia associate, Price Wooldridge, discusses Scholar Rock winning a U.S. patent to Apitegromab for treating Spinal Muscular Atrophy (SMA). Also, Kevin Schaefer talks about retur...
7 Apr 20217min
Zolgensma Helped Pre-symptomatic Babies Achieve Age-Appropriate Motor Milestones
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma helped pre-symptomatic babies with Spinal Muscular Atrophy (SMA) achieve age-appropriate motor milestones. Instagram i...
5 Apr 202111min
Zolgensma Continues to Prevent Motor Function Decline for 5 Years
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgenzma continues to prevent motor function decline for five years for patients with Spinal Muscular Atrophy (SMA). Also, SMA ...
2 Apr 202111min
Evrysdi Leads to Longer-term Benefits for SMA Types 2, 3, Data Show
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Evrysdi leads to longer-term benefits for Spinal Muscular Atrophy (SMA) patients, Types 2 and 3. Forums Director Kevin Schaefer ...
31 Mar 202111min
Zolgenzma Found To Be Safe And Effective in SMA Toddlers & The Importance of Schedules And Routines
SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgenzma being found safe and effective in Spinal Muscular Atrophy (SMA) toddlers. Also, DeAnn Runge welcomes new listeners and for...
29 Mar 202110min
Evrysdi Safe in SMA Patients Previously Given Other Therapies & The Evolution of Technology
SMA News Today’s multimedia associate, Price Wooldridge, discusses how treatment with Evrysdi is safe in Spinal Muscular Atrophy (SMA) patients previously given other therapies. DeAnn Runge talks abo...
26 Mar 20219min
SMA Foundation and PTC Joint Efforts to Fund Regenerative Medicine Research
SMA News Today’s multimedia associate, Price Wooldridge, discusses the SMA Foundation and PTC Therapeutics joint efforts to fund regenerative medicine research. Also, Forums Director Kevin Schaefer s...
24 Mar 20216min
