SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

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Episoder(445)

Reldesemtiv Aids Motor and Respiratory Strength in Types 2 and 3, Early Trial Finds

Reldesemtiv Aids Motor and Respiratory Strength in Types 2 and 3, Early Trial Finds

SMA News Today’s multimedia associate, Price Wooldridge, discusses how the therapy, Reldesemtiv, aids motor and respiratory strength in Spinal Muscular Atrophy (SMA) Types 2 and 3. Also, with vaccin...

22 Mar 20219min

Zolgensma Available Soon to Eligible SMA Type 1 Patients in England, Scotland

Zolgensma Available Soon to Eligible SMA Type 1 Patients in England, Scotland

SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgenzma being added to the list of eligible medications for Spinal Muscular Atrophy (SMA) Type 1 patients in England and Scotland. ...

19 Mar 20219min

Muscles Controlling Eye Movements Not Affected by SMA & Never Give Up Searching for Your Advocates

Muscles Controlling Eye Movements Not Affected by SMA & Never Give Up Searching for Your Advocates

SMA News Today’s multimedia associate, Price Wooldridge, discusses how adults with Spinal Muscular Atrophy (SMA) usually don’t experience weakness or impairment of eye muscles. Forums Director Kevin ...

17 Mar 20218min

#78: Discussing Switching Treatments, News Stories, and Recent Columns

#78: Discussing Switching Treatments, News Stories, and Recent Columns

In episode 78, host Kevin Schaefer talks with fellow SMA News Today contributor and Senior Director Michael Morale. They discuss Michael’s decision to switch back to Spinraza, treatment updates, and o...

16 Mar 202140min

The Challenges Of Life as a Teen And Young Adult With SMA & Being Denied Access to SMA Treatment

The Challenges Of Life as a Teen And Young Adult With SMA & Being Denied Access to SMA Treatment

SMA News Today’s multimedia associate, Price Wooldridge, discusses the challenges of life as a teen and young adult with Spinal Muscular Atrophy (SMA). Also, SMA News Today content creator DeAnn Rung...

15 Mar 202113min

CHMP Favors EU Approval of Evrysdi as 1st Oral, At-home SMA Treatment & Discussing GI Issues

CHMP Favors EU Approval of Evrysdi as 1st Oral, At-home SMA Treatment & Discussing GI Issues

SMA News Today’s multimedia associate, Price Wooldridge, discusses the Committee for Medicinal Products for Human Use (CHMP) approval of Evrysdi as the first oral, at-home Spinal Muscular Atrophy (SMA...

12 Mar 20218min

Evrysdi Seen to Improve Survival, Motor Development of Infants with SMA Type 1

Evrysdi Seen to Improve Survival, Motor Development of Infants with SMA Type 1

SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi improving survival and motor development in infants with Spinal Muscular Atrophy Type 1. Forums Director Kevin Schaefer talk...

10 Mar 202110min

Mother Raises 4 Adopted Girls From China With SMA, Chronic Illnesses

Mother Raises 4 Adopted Girls From China With SMA, Chronic Illnesses

SMA News Today’s multimedia associate, Price Wooldridge, discusses a mother who has adopted and is raising four girls from China with Spinal Muscular Atrophy (SMA). Also, a variety of topics are bein...

8 Mar 20219min

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