Brain Involvement in SMA Type 1 Still Poorly Understood & Struggling to Personalize New Wheelchair
SMA News Today’s multimedia associate, Price Wooldridge, discusses why brain involvement in Spinal Muscular Atrophy Type 1 is still poorly understood. Also, DeAnn Runge talks about how she’s struggli...
5 Mar 20218min
Study Finds Varying Perspectives From Parents on Spinraza Therapy for Children
SMA News Today’s multimedia associate, Price Wooldridge, discusses the varying perspectives from parents on Spinraza therapy for their children. Forums Director Kevin Schaefer reads a column by Ari A...
3 Mar 202114min
#77: Interview With Jeremy Camp, SMA Parent and Advocate
In episode 77, host Kevin Schaefer talks with Jeremy Camp from San Diego, California. Jeremy and his wife Amanda have three children, and their youngest son Asher has SMA Type 1. He talks about his fa...
2 Mar 202136min
New SMN-boosting Molecule Shows Promise as Add-on Therapy & Rare Disease Day and New Forums Topics
SMA News Today’s multimedia associate, Price Wooldridge, discusses a new SMN-boosting molecule which shows promise as an add-on therapy for Spinal Muscular Atrophy (SMA). Also, Rare Disease Day is a ...
1 Mar 20219min
Rare Case of SMA Linked With Myoclonic Epilepsy Detailed in Report
SMA News Today’s multimedia associate, Price Wooldridge, discusses a rare case of Spinal Muscular Atrophy linked with a progressive myoclonic epilepsy. Balancing mind and body can be tricky. DeAnn Ru...
26 Feb 20216min
Assistive Devices Should Be Standard in Managing SMA Type 1 & I’m Grateful for My Friends
SMA News Today’s multimedia associate, Price Wooldridge, discusses assistive devices which should be standard in managing Spinal Muscular Atrophy (SMA) Type 1. Forums Director Kevin Schaefer talks ab...
24 Feb 202111min
Quantitative MRI Is Sensitive Measure of Muscle Decline
SMA News Today’s multimedia associate, Price Wooldridge, discusses quantitative MRI imaging showing itself to be a sensitive measure of decline in young adults with Spinal Muscular Atrophy (SMA). Now...
22 Feb 202110min
Spinraza Improves Motor Function in Case of Teenager with Late-onset SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improves motor function in the case of a teenager with late-onset Spinal Muscular Atrophy (SMA). SMA News Today content...
19 Feb 20217min
