Accessible Travel, Becoming Friends With Your Caregivers and The Importance of Exercise With SMA
Some recent topics being discussed on the forums include accessible travel and becoming friends with your caregivers. Also, Dose of DeAnn has a new episode where she collaborates with a community memb...
12 Feb 20206min
New Treatment Algorithm For SMA Infants Via Vital Newborn Screening & Going To The Bathroom
SMA News Today’s multimedia associate, Price Wooldridge, discusses a new treatment algorithm for SMA infants diagnosed via vital newborn screening. Also, for those with mobility issues one of the most...
10 Feb 20205min
ZPR1 Protein May Be New PotentialTherapeutic Target For SMA & NBC's Pilot Featuring Kid With SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the ZPR1 protein may be a new potential therapeutic target for SMA. Also, Forums Director Kevin Schaefer talks about an NBC pilot...
7 Feb 20205min
Embracing The Power of Your Voice & Struggling As a Family
Forums Director Kevin Schaefer talks about embracing the power of his voice in his latest column. Also, every family goes through their share of triumphs and tribulations. In Michael Casten’s latest c...
5 Feb 20205min
#51 - Interview with Ryan Manriquez and Nora Zade
In episode 51, I talked with Ryan Manriquez and Nora Zade from Sacramento, California. Ryan is a college student with SMA Type 2, and he and Nora have been dating for several months. Both are sophomor...
4 Feb 202021min
100 Free Zolgensma Treatments Worldwide in 2020 & Unplugging the iPad, Waste of Time
SMA News Today’s multimedia associate, Price Wooldridge, discusses how up to 100 free Zolgensma treatments are going to go out worldwide in 2020 under an access program. Also, one thing DeAnn Runge st...
3 Feb 20208min
Adults With SMA Tend To Report Low Prevalence of Non-Motor Symptoms & Reading From the SMA Forums
We discuss a study that finds adults with SMA, tend to report low prevalence of non-motor symptoms & Forums Director Kevin Schaefer reads from a Monday Motivation post in the SMA News Today Forums. A...
31 Jan 20205min
Managing Stomach Issues As SMA Patient & Great Conversation in the SMA News Today Forums
Forums Director Kevin Schaefer talks about trying to manage stomach issues as an individual with SMA & as usual there are great conversations going on in the SMA News Today forums, says DeAnn Runge. D...
29 Jan 20205min
