Family Says Zolgensma Saved All of Their Lives; Their Gene Therapy & Tyler Dukes
We discuss a family that states Zolgensma saved all of their lives, and they share their families journey through gene therapy, Also, Community Development Manager Kevin Schaefer reads from Tyler Duke...
9 Aug 20198min
Zolgensma's Potential To Change The Whole Landscape of SMA & Melissa Milinovich's Story
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how Zolgensma has the potential to change the whole landscape of SMA. Also, Community Development Manager Kevin Schaefer re...
7 Aug 20199min
#39 - Interview With Jason Bertsch
In episode 39 of the SMA News Today Podcast, host Kevin Schaefer interviews Jason Bertsch from Greenfield, Indiana. Jason and his wife Kelly have two sons, and their youngest, Luke, has SMA Type 2. Ja...
6 Aug 201933min
European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence
We discuss how European SMA advocates question the EU’s willingness to reimburse for Zolgensma. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about claiming your independenc...
5 Aug 20198min
#38 - Roundtable Discussion - Discussion for July 2019
In the latest episode of the SMA News Today Podcast, hosts Kevin Schaefer and Michael Morale discuss updates regarding SMA therapies Spinraza and Reldesemtiv. Also, Kevin and columnist Brianna Albers ...
16 Jul 201940min
#37 - Interview With Courtney Smith And Trevor Rogerson
In episode 37 of the SMA News Today Podcast, host Kevin Schaefer interviews Courtney Smith and her boyfriend Trevor Rogerson. They live in Seattle, Washington, and Courtney has SMA Type 2. Are you in...
2 Jul 201920min
#35 - Interview With Mike Blakey
In episode 35 of the SMA News Today Podcast, host Kevin Schaefer interviews Mike Blakey from Gainesville, Florida. Mike is a part-time CPA and attorney, and he has SMA Type 3." Photo Contributed by M...
4 Jun 201936min
#34 - Roundtable Discussion - Discussion for May 2019
In episode 34 of the SMA News Today Podcast, hosts Kevin Schaefer and Michael Morale talk about the latest SMA news and perspectives from May 2019. Topics include clinical trial updates from the 2019 ...
21 Mai 201928min
