SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

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Episoder(445)

#117: Delphine Andrews and Kevin Davis, Interabled Couple

#117: Delphine Andrews and Kevin Davis, Interabled Couple

In episode 117, host Kevin Schaefer talks with Delphine Andrews and Kevin Davis from North Carolina. Delphine has SMA and she began dating Kevin in early 2020. They discuss their careers, daily lives,...

1 Des 202253min

#118: Aging and SMA

#118: Aging and SMA

In episode 118, host Kevin Schaefer talks with work colleagues Michael Morale and DeAnn Runge about aging and SMA. They start by discussing Scholar Rock’s experimental therapy, Apitegromab, and go ove...

22 Nov 202252min

#116: Shaniqua Granby, Law Professional With SMA

#116: Shaniqua Granby, Law Professional With SMA

In episode 116, host Kevin Schaefer talks with Shaniqua Granby from Virginia Beach, Virginia. Shaniqua is an equal employment opportunity specialist, and she has SMA Type 3. She discusses going to law...

18 Okt 202237min

#115: Jose Flores, Author and Motivational Speaker

#115: Jose Flores, Author and Motivational Speaker

In episode 115, host Kevin Schaefer talks with Jose Flores from Miami, Florida. Jose is a bestselling author and motivational speaker who lives with SMA Type 3. He discusses his journey toward entrepr...

4 Okt 202250min

#114: Daniele Johnson, SMA Mom and Advocate

#114: Daniele Johnson, SMA Mom and Advocate

In episode 114, host Kevin Schaefer talks with Daniele Johnson from Evansville, Indiana. Daniele and her husband’s youngest son, Anthony, has SMA type 0. She talks about her son’s diagnosis, pursuing ...

20 Sep 202230min

#113: Dustin Swafford, Power Soccer Coach and Player

#113: Dustin Swafford, Power Soccer Coach and Player

In episode 113, host Kevin Schaefer talks with Dustin Swafford from Georgia. Dustin has been playing and coaching a power soccer team for years, and his team recently won the national championship. He...

6 Sep 202235min

#112: Lexi Villa, Social Media Influencer and Disability Advocate

#112: Lexi Villa, Social Media Influencer and Disability Advocate

In episode 112, host Kevin Schaefer talks with Lexi Villa from Torrance, California. Lexi works in retail and shares her life with SMA on social media. She discusses moving away from home at a young a...

16 Aug 202256min

#111: Steven Verdile, Graphic Designer and Disabled Creative

#111: Steven Verdile, Graphic Designer and Disabled Creative

In episode 111, host Kevin Schaefer talks with Steven Verdile, a graphic designer and media creator from New York City. Steven is also the founder and editor-in-chief of The Squeaky Wheel, an online d...

2 Aug 202228min

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