GROWING UP WITH KATE (EHLERS-DANLOS SYNDROME)
🟢 "My brain nearly fell out of my head." Listen to remarkable ADHD & Autistic music educator for neuroatypical children Kate O’Brienshare her 20+ year diagnostic odyssey with Ehlers-Danlos Syndrome (...
25 Okt 202229min
GROWING UP WITH JESSICA (3 DIFFERENT GENETIC CODES)
🟢 "Celebrate Strengths!" Did you know that having more than one genetic code is relatively common?Few people better are qualified than Jessica Langenhoff, a Biomedical Information Specialist from the...
18 Okt 202229min
GROWING UP WITH ANITA (PARENT 3 EXTRA X BOYS)
🟢 “Early intervention is the absolute key.” If having one child with an Extra 47th chromosome is relatively common and can happen to anyone, to have three is extraordinarily unlikely. Listen to Anita...
11 Okt 202235min
GROWING UP WITH BROCK (EXTRA X)
🟢 “You're enough... just as you are.” Listen to Brock Vestrum from Minnesota tell his inspiring story about growing up with an Extra X chromosome: how he found out about his difference, overcame his ...
4 Okt 202226min
GROWING UP WITH STEPHEN (EXTRA X - 2/2)
🟢 “I wish genetic testing at birth was compulsory. Early diagnosis is early intervention. It makes things so much easier.” Stephen Malherbe was 17 when he diagnosed with an extra 47th X chromosome an...
27 Sep 202214min
GROWING UP WITH STEPHEN (EXTRA X - 1/2)
🟢 "You're going to be ok. It's going to be tough. But at the end of this, you're going to come out a much stronger and wiser person." Stephen Malherbe is currently the only known published author in ...
20 Sep 202219min
GROWING UP WITH RIC (EXTRA Y - 2/2)
🟢 "I really enjoy the journey... Like a ball going down a pipe, I bounce around a lot. I don't necessarily move it a straight line. And that's a good thing!" Ric Clark was 39 when found out he had an...
13 Sep 202223min
GROWING UP WITH RIC (EXTRA Y - 1/2)
🟢 "For a long time I believed that everything was my fault. And it crushed me. But it also built my resilience. Because I refused to be crushed." Ric Clark was 39 when found out that he had an extra ...
6 Sep 202225min
