"HOW TO PARENT A CHILD WITH DOWN'S", FEATURING AUTHOR JODI SAMUELS (1/2)
🟢 "YOUR CHILD IS A PERSON FIRST, NOT A MEDICAL CONDITION." In this first of two episodes, Jodi is brutally honest about the challenges she faced...coming to terms with her daughter’s diagnosis of Dow...
3 Jan 202333min
Growing Up with Toby in Australia: Extra X and Intersex (2/2)
🟢 "We're not a disorder. We're not a syndrome. We're people." [Warning: this episode contains explicit language]. Toby Whittington is a successful social entrepreneur from Australia who found out he ...
13 Des 202232min
Growing Up with Toby in Australia: Extra X Entrepreneur (1/2)
🟢 "Everything that you took for granted is about to be reviewed." Former street performer and fashion designer Toby Whittington is a successful social entrepreneur and well-known public figure in Aus...
6 Des 202229min
GROWING UP WITH AXYS, FEATURING EXEC. DIRECTOR CAROL MEERSCHAERT
🟢 Who can parents turn to when they learn that their child has Extra X or Y chromosomes?Why are so few people ever diagnosed, and health care provider awareness still low? How does AXYS fill the gaps...
28 Nov 202233min
GROWING UP WITH MICHAEL (2/2): PARENTING, POLICY, EULOGY
🟢 "He struggled with addiction all his life but was currently on a much better path." In our last episode, Gary Glissman told the story of his son Michael, diagnosed with an Extra X at the age of 24,...
22 Nov 202223min
GROWING UP WITH MICHAEL (1/2): STRENGTHS, RISKS, DEATH
🟢 "A premature death that could've been avoided in so many ways." Gary Glissman, ex-Chairperson of AXYS, tells the heartbreaking story of his son Michael, diagnosed with an Extra X at the age of 24 a...
15 Nov 202222min
Growing Up with Alfred, Pres. Klinefelter Association (2/2)
🟢 “After diagnosis you are still the same person as before.” Diagnosed at the age of 31 with an Extra X, Alfred Jonker is the President of the Dutch Klinefelter Association and a pioneer in helping t...
8 Nov 202216min
Growing Up with Alfred, Pres. Klinefelter Association (1/2)
🟢 “Is it one floor you will build, or is it twenty? Early diagnosis is the foundation.” Alfred Jonker is the President of the Dutch Klinefelter Association and a visionary in his holistic approach to...
1 Nov 202222min
