The Road Back to Running - A Dystonia Patient Journey With Jukka Sillanpää
In this episode of the Positive Twist Podcast we meet Jukka a successful career man and runner who was diagnosed with dystonia in the middle of life. He tells his story of what he went through, how he...
28 Aug 202356min
A Dystonia Love Story - What Good Relationships Mean For Coping Well, With Gill and John Ainsley
In this episode we meet with Gill and John Ainsley who tell the story of how Gill was diagnosed with dystonia in her forties. They were in the middle of life, rearing children and excelling in their c...
31 Jul 202340min
Finding Success in Career, Love and Life, in Spite of Living With Cervical Dystonia, Featuring Emmanuel Dalmas
In this episode we get to know Emmanuel Dalmas from France. He tells his very inspiring story of finding success in all aspects of life, in spite of living with dystonia. It took Emmanuel 20 years to ...
24 Mar 202134min
The Importance of Physiotherapy and a Collaborative Approach to Treatment of Dystonia, With Physiotherapist Johanna Blom
In this episode we meet with Johanna Blom a physiotherapist who has specialized in helping patients with dystonia. She tells us about how she works with a team of medical professionals to ensure that ...
24 Feb 202122min
Ten Years of The David Marsden Award, an Interview With Recipients Prof. Mark Edwards and Asst. Prof. Niccolo Mencacci
In this episode of the Positive Twist we meet with Professor Mark Edwards from St George's in London, and Assistant Professor Niccolo Mencacci at Northwestern University outside of Chicago (USA). Mark...
27 Jan 202137min
Living With a Neurological Disorder During The Covid-19 Pandemic, A Talk With Donna Walsh and Marjan Jahanshahi
In this episode we talk to Donna Walsh from EFNA, the European Federation of Neurological Associations and Professor Emeritus Marjan Jahanshahi from UCL Queens Square Institute of Neurology in London....
22 Des 202045min
How Dystonia Europe Came to Be, and What a Life's Work in Patient Advocacy Has Brought Alistair Newton
In today's episode we hear Alistair Newton tell his dystonia story, as well as share with us his important involvement in the dystonia community. Alistair founded Dystonia Europe as a result of being...
25 Nov 202052min
Making Dystonia Your Friend, with Monika Benson
In this episode we sit down with Monika Benson, Executive Director of Dystonia Europe. Monika has been living with cervical Dystonia for 19 years, and after years of feeling isolated she now feels as ...
29 Okt 202019min
