The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

Attorney Krysti Monaco on winning children's social security benefits

Attorney Krysti Monaco on winning children's social security benefits

Krysti Monaco helps families apply for disability benefits when their children are too disabled to work.  In this episode she describes the available programs, application process, challenges, pitfall...

7 Apr 39min

Cell membrane health with Dr. Melanie Stein on Mast Cell Matters with Dr. Tania Dempsey

Cell membrane health with Dr. Melanie Stein on Mast Cell Matters with Dr. Tania Dempsey

Dr. Melanie Stein, ND is a licensed Naturopathic Physician in Portland, Oregon and a recognized leader in Cell Membrane Therapy for the treatment of complex and chronic illness. She specializes in res...

1 Apr 52min

Elizabeth on her comeback and book: The Toll it Took

Elizabeth on her comeback and book: The Toll it Took

Elizabeth was a teen athlete when she first became bed bound with POTS and several other conditions including narcolepsy, epilepsy and gastroparesis.  After 5 years of struggling to be heard or helped...

22 Mar 34min

Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti

Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director...

17 Mar 44min

Julie on the lengths she had to go to for recovery

Julie on the lengths she had to go to for recovery

Julie's recovery from POTS and other serious conditions involved an epic tale of sheer determination, next-level advocacy, some unconventional treatments (which we are not endorsing: talk to YOUR doct...

7 Mar 45min

Dr. Dempsey’s cutting edge treatments (part 2) - Mast Cell Matters

Dr. Dempsey’s cutting edge treatments (part 2) - Mast Cell Matters

Dr. Dempsey is always looking for new therapies that may help her complex patients.  In this episode Dr. Dempsey discusses how she incorporates treatments with Methylene Blue, peptides, and the Nanovi...

1 Mar 47min

Maggie on being both patient and Mental Health Therapist

Maggie on being both patient and Mental Health Therapist

Maggie was 14 when she started passing out regularly, and she still does occasionally, but that didn't stop her from getting back to school, completing graduate work and becoming a Mental Health Thera...

25 Feb 36min

The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L

The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L

Joanna Behm, EDD OTR/L and Madison Thornton, OTD, OTR/L are experts in occupational therapy (OT) as therapists, dysautonomia patients, and Joanna is even a professor of OT.  Together they created a wo...

17 Feb 37min

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