The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

Dr. Casey Kelley on Mast Cell Matters

Dr. Casey Kelley on Mast Cell Matters

Dr. Casey Kelley is Board Certified in family and integrative medicine, teaches on the faculty of the Northwestern Medical School, and her care is informed by her own past experience having complex ch...

10 Feb 40min

Sophie on life after severe COVID

Sophie on life after severe COVID

Surviving severe COVID was just beginning of Sophie's health adventure.  She discusses her unexpected COVID-related medical challenges, new job and living situation, the stenting procedure that helped...

3 Feb 41min

Attorney Nancy Cavey on disability benefits for POTS/dysautonomia

Attorney Nancy Cavey on disability benefits for POTS/dysautonomia

Attorney Nancy Cavey has spent 39 years representing people with disabilities all over the U.S., and is an expert in helping people qualify based on POTS, MCAS, hEDS and other invisible illness.  In t...

27 Jan 42min

Singer-songwriter Nellie Clay on “the hangover without the party”

Singer-songwriter Nellie Clay on “the hangover without the party”

Western folk singer-songwriter Nellie has recorded multiple albums and EPs, toured nationally from Alaska to Nashville, appeared on PBS’s Songs at the Center, opened for Grammy-nominated artists, and ...

20 Jan 44min

Zac Spiritos, MD, MPH on neurogastroenterology with Dr. Tania Dempsey on Mast Cell Matters

Zac Spiritos, MD, MPH on neurogastroenterology with Dr. Tania Dempsey on Mast Cell Matters

Dr. Spiritos is double board certified in gastroenterologist and internal medicine, and specializes in IBS, gut motility, POTS and the complex conditions and symptoms that go along with it.  He and Dr...

13 Jan 1h 2min

Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS

Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS

Vascular surgeons Dr. Robert Hacker and Dr. Deena Chihade share their unusual path to POTS via looking at the venous system, and explain what they are seeing in patients before and after addressing ve...

4 Jan 52min

Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS

Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS

Heather is a Nurse Practioner with long experience in vascular medicine, a dysautonomia patient herself, and is now working with a vascular clinic in Toledo, OH to bring genetic testing and counseling...

30 Des 202542min

Sarah from FL on life after COVID/POTS/MCAS

Sarah from FL on life after COVID/POTS/MCAS

Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new gam...

21 Des 202543min

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