The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

12th Annual 5k/2k Invitation

12th Annual 5k/2k Invitation

Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH.  More info...

31 Aug 20251min

POTS Diaries with Mackenzie from Massachusetts

POTS Diaries with Mackenzie from Massachusetts

Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book.  In this episode she describes her journey, including how a TikTok video ...

24 Aug 202526min

MCAS symptoms “down there” with Dr. Tania Dempsey

MCAS symptoms “down there” with Dr. Tania Dempsey

MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and ma...

16 Aug 202550min

Bria from Wales, a professional patient rights advocate

Bria from Wales, a professional patient rights advocate

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis.  Bria is still looking for bette...

9 Aug 202545min

Dr. Asad Khan on long COVID, micro-clots and more

Dr. Asad Khan on long COVID, micro-clots and more

Dr. Asad Khan was a pulmonologist on the front lines of COVID in Manchester England when he became a long COVID patient himself.  Now retired due to chronic illness, he is a leader in patient advocacy...

4 Aug 20251h 9min

POTS Diaries with Randi:  Surgical nurse, stoic and survivor

POTS Diaries with Randi: Surgical nurse, stoic and survivor

Having POTS, myocarditis, COVID and a heart attack right before your 40th birthday is not for the faint of heart, but Randi is a smart, strong, stoic surgical nurse who tells us all about it and more ...

29 Jul 202530min

Vagal nerve stimulation and heart rate variability with Exercise Physiologist Caelum Schild

Vagal nerve stimulation and heart rate variability with Exercise Physiologist Caelum Schild

Caelum Schild is a Senior Exercise Physiologist in Adelaide Australia who specializes in POTS and related conditions. In this episode he describes some of the tools he uses, such as tVNS (transcutaneo...

20 Jul 202550min

Kai, on living with profound ME/CFS

Kai, on living with profound ME/CFS

Kai has severe ME/CFS, and is using precious energy for this episode to help us understand what life is like with profound energy limitations: what an average day is like, the price paid for doing bas...

13 Jul 202546min

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