Live from the 12th annual Run for Research - interviews with participants
Our 12th annual 5k/2k took place virtually and at Wittenberg University in Springfield Ohio and raises funds for research to help today's struggling POTS patients. We interviewed several participants...
11 Nov 202541min
Dr. Robert Groysman on mechanisms, novel treatments, E.A.T., stellate ganglion block and more
Dr. Groysman is founder of the COVID Institute, where they treat POTS/dysautonomia, MCAS, ME/CFS, long COVID, and are reporting good outcomes with evidence-based treatments that are relatively novel i...
4 Nov 20251h 1min
Jill Krapf, MD on painful sex, vulvovaginal disorders and mast cells with Dr. Tania Dempsey on Mast Cell Matters
Dr. Jill Krapf is a Board-Certified OB/GYN who specializes in genitopelvic pain and skin conditions, is founder of the Center for Vulvovaginal Disorders and co-author of the book When Sex Hurts: Under...
25 Okt 202547min
Tristan, from hiking, skating and EMT training to a looong wait
Tristan was an avid hiker, skate boarder and EMT-in-training when his world suddenly started spinning. Although his doctor diagnosed POTS and referred him to a top specialist, he has been waiting two ...
19 Okt 202536min
Dr. Kendal Stewart on a ‘hypo-adrenergic’ variant of POTS, genetics and novel treatments
Dr. Kendal Stewart, former skull surgeon, now specializes in addressing root causes of neuroimmune conditions like POTS. In this episode he discusses seeing 'hypo-adrenergic' POTS, the underlying gen...
12 Okt 202549min
Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing
Patrick Ussher is an author, advocate, educator and patient himself. His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/...
7 Okt 20251h 7min
Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert
Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director...
28 Sep 202546min
Taylor’s pleasure cruise that turned into another journey
Taylor caught COVID on a pleasure cruise and life has been pretty different ever since, but she is doing everything in her power to regain function and wellness, including going to top institutions an...
22 Sep 202534min
