The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS

Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS

Heather is a Nurse Practioner with long experience in vascular medicine, a dysautonomia patient herself, and is now working with a vascular clinic in Toledo, OH to bring genetic testing and counseling...

30 Des 202542min

Sarah from FL on life after COVID/POTS/MCAS

Sarah from FL on life after COVID/POTS/MCAS

Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new gam...

21 Des 202543min

Dr. Dempsey on leading edge treatments she is finding helpful

Dr. Dempsey on leading edge treatments she is finding helpful

One of the most common questions we get from listeners is about the novel treatments that Dr. Dempsey mentions, such as therapeutic plasmapheresis exchange (or apheresis), SOT, ozone therapy, UV light...

15 Des 20251h 4min

New (free) AI intelligence platform for patients with Dr. Jen Curtin

New (free) AI intelligence platform for patients with Dr. Jen Curtin

Dr. Jennifer Curtin is Medical Director of the RTHM clinic and former complex chronic illness patient herself, after having ME/CFS while in medical school.  Now her team has created the RTHM intellige...

9 Des 202551min

Jace on health policy, why “being a burden is a blessing”, and much more

Jace on health policy, why “being a burden is a blessing”, and much more

Jace had hEDS and POTS for years before it was diagnosed and then had to wait MORE years to start getting any treatment, but in the meantime graduated college, got an advanced degree, worked on state ...

2 Des 202547min

Progress for the COVID vaccine injured with REACT19 Co-Chairman Brianne Dressen

Progress for the COVID vaccine injured with REACT19 Co-Chairman Brianne Dressen

Brianne Dressen co-founded REACT19 to help support people with life-altering COVID-19 vaccine injuries after being injured herself in one of the original clinical trials, and then learning the hard wa...

25 Nov 202543min

Dr. Eboni Cornish on root causes of brain inflammation with Dr. Dempsey on Mast Cell Matters

Dr. Eboni Cornish on root causes of brain inflammation with Dr. Dempsey on Mast Cell Matters

This is a not-to-be-missed conversation for anyone interested in brain inflammation.  Dr. Eboni Cornish, M.D. is Associate Medical Director at Amen Clinics, Fellow and Treasurer of the Board for the I...

17 Nov 202548min

Live from the 12th annual Run for Research - interviews with participants

Live from the 12th annual Run for Research - interviews with participants

Our 12th annual 5k/2k took place virtually and at Wittenberg University in Springfield Ohio and raises funds for research to help today's struggling POTS patients.  We interviewed several participants...

11 Nov 202541min

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