The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

Dr. Greg Plotnikoff on favorite new findings and a thiamin theory with Dr. Tania Dempsey on Mast Cell Matters

Dr. Greg Plotnikoff on favorite new findings and a thiamin theory with Dr. Tania Dempsey on Mast Cell Matters

Dr. Greg Plotnikoff is a thought leader in dysautonomia/MCAS and complex chronic illness and in this episode he is freshly returned from giving two presentations at the Dysautonomia International Conf...

14 Sep 202550min

Valerie is thriving in law school after a life-threatening reaction to medication

Valerie is thriving in law school after a life-threatening reaction to medication

Valerie had a life-threatening reaction to a medication administered in the ER, and she has had POTS ever since.  Valerie's advice to other patients with many sensitivities is to consider getting phar...

8 Sep 202541min

Dr. Jeffrey Boris on the genetic landscape of POTS

Dr. Jeffrey Boris on the genetic landscape of POTS

Dr. Boris is a Pediatric Cardiologist, Pediatrician, and leading expert on pediatric POTS.  Here he explains his team's new findings about the genetic signals found in pediatric POTS patients:   What ...

1 Sep 202545min

12th Annual 5k/2k Invitation

12th Annual 5k/2k Invitation

Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH.  More info...

31 Aug 20251min

POTS Diaries with Mackenzie from Massachusetts

POTS Diaries with Mackenzie from Massachusetts

Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book.  In this episode she describes her journey, including how a TikTok video ...

24 Aug 202526min

MCAS symptoms “down there” with Dr. Tania Dempsey

MCAS symptoms “down there” with Dr. Tania Dempsey

MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and ma...

16 Aug 202550min

Bria from Wales, a professional patient rights advocate

Bria from Wales, a professional patient rights advocate

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis.  Bria is still looking for bette...

9 Aug 202545min

Dr. Asad Khan on long COVID, micro-clots and more

Dr. Asad Khan on long COVID, micro-clots and more

Dr. Asad Khan was a pulmonologist on the front lines of COVID in Manchester England when he became a long COVID patient himself.  Now retired due to chronic illness, he is a leader in patient advocacy...

4 Aug 20251h 9min

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