WTCF! A Cystic Fibrosis Podcast

WTCF! A Cystic Fibrosis Podcast

When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey. We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living with CF to help to paint a well-rounded vision of what living with Cystic Fibrosis.

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Episoder(20)

Episode 10: CF Toddler

Episode 10: CF Toddler

In this episode, Ian and I get to grips with life with a CF toddler. It's a general update on how CF affects our everyday life, plus a few tips on navigating a few milestones as your little CFer grows...

31 Jul 202245min

Episode 9: Transplant

Episode 9: Transplant

Most of the New Zealand CF community know Lizzie McKay, a 30-year-old person with CF who works for CFNZ as a Communications Coordinator. Her friendly and bubbly nature makes her easy to like but her ...

17 Mai 202242min

Episode 8: Kalydeco

Episode 8: Kalydeco

Chris Macleod is a Candian with CF who was one of Canada's first patients on Kalydeco ten years ago. He’s now 52 and has advocated for CF for many years. He’s also written a book called Beating The Od...

19 Apr 202249min

Episode 7: Trikafta

Episode 7: Trikafta

Welcome to Season 2 or What the CF! We're so happy to be back and ready to share lots of CF stories about treatment with you.If you're part of the CF community and not aware of Trikafta (or Kraftrio) ...

23 Mar 202255min

Episode 6: Book

Episode 6: Book

Ingrid chats to Eilís Moroney, the author of 'Our Baby Has 65 Roses' and mum of a little person with CF -  two-year-old AibhÍn, about diagnosis and how writing a book was her coping mechanism. Listen ...

1 Sep 202151min

Episode 5: Dads

Episode 5: Dads

Eddie, Henry and David are all parents of little CFers. Ian chats to these three dads about diagnosis, telling friends and family, and what NOT to say to a CF parent. Thanks again to our guests for sh...

12 Apr 202142min

Episode 4: Genetics

Episode 4: Genetics

Trigger warning - this podcast discusses pregnancy termination following pre-natal testing. Ingrid chats with Genetic Counsellor Kelly Sullivan about all things genes when it comes to getting the Cys...

29 Mar 202134min

Episode 3: Mums

Episode 3: Mums

Sophie, Kayla and Jessica are all mums of little CFers born during the pandemic. Ingrid chats to these mums about diagnosis, telling friends and family and what NOT to say to a CF parent.

15 Mar 202141min

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