From Loss to Advocacy: Bryan and Danielle's Journey

From Loss to Advocacy: Bryan and Danielle's Journey

In this heartfelt conversation, Rachel speaks with Bryan and Danielle Docobo, a couple who have turned their personal tragedy into a mission of advocacy for rare disease families. Their boys, Liam and Ethan were both diagnosed with a rare genetic condition known as Coats Plus Syndrome by a team at Joe DiMaggio Children's Hospital. They share their journey of navigating grief after the loss of their son Ethan, while also fighting for the health of their other son, Liam. The couple discusses the importance of community support, spirituality, and finding meaning in their loss as they work to raise awareness and funds for research. Their story is one of resilience, love, and the power of turning grief into action.

To learn more about Coats Plus Syndrome and ways you can donate, you can reach out to Bryan@coatsplusfoundation.com

Follow me for more real, relatable mental health support:

The podcast content is intended for informational and educational purposes only and should not be considered a substitute for professional medical or mental health advice.

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(81)

Growing Up Oldest of 13, Leaving at 17, and Building a Life Nobody Showed You How to Live

Growing Up Oldest of 13, Leaving at 17, and Building a Life Nobody Showed You How to Live

Rachel Blogg sits down with Alicia Michelle, founder of The Koi Collective, for a conversation that took a completely unexpected turn. What starts as a business chat quickly becomes one of the most ra...

2 Juni 54min

From the NFL to Real Estate to a TikTok That Went Viral: A Conversation About Kindness, Purpose, and What We Owe Each Other

From the NFL to Real Estate to a TikTok That Went Viral: A Conversation About Kindness, Purpose, and What We Owe Each Other

Rachel Blogg sits down with Malcolm, founder and CEO of Langdon Park Capital, whose paths crossed in the most unexpected way — through a TikTok video Rachel posted after helping his college-aged son g...

26 Maj 53min

How Garrison Carter Built Mental Toughness Beyond Basketball

How Garrison Carter Built Mental Toughness Beyond Basketball

In this episode of Imperfectly Human, Rachel sits down with Garrison Carter for a powerful conversation about identity, discipline, leadership, and resilience. As a senior student-athlete at Illinois ...

19 Maj 46min

From Rock Bottom to 15 Years Sober: What Finally Made It Stick

From Rock Bottom to 15 Years Sober: What Finally Made It Stick

Rachel Blogg sits down with Meghan Brooks, a recovery advocate and treatment professional with 15 years of sobriety, who shares the honest, unglamorous truth about what it actually took to get sober a...

12 Maj 46min

Why Kindness Starts With Saying No

Why Kindness Starts With Saying No

Rachel Blogg sits down with Dido Balla, CEO of Kindness Matters, for an honest conversation about what kindness actually means and why it has nothing to do with always saying yes. Together they explor...

5 Maj 39min

From Perfectly Imperfect Me 365 to Imperfectly Human: A New Conversation on Strength

From Perfectly Imperfect Me 365 to Imperfectly Human: A New Conversation on Strength

In this episode, the podcast enters a new chapter as Perfectly Imperfect Me 365 transitions into Imperfectly Human—a name that reflects the deeper conversations that have naturally unfolded over time....

28 Apr 5min

When You Die, You Look Like Your Decisions

When You Die, You Look Like Your Decisions

What if your life isn’t defined by your past—but by your decisions? In this solo episode, I challenge the idea that your childhood gets a lifetime vote over your future. This isn’t about blame—it’s ab...

21 Apr 6min

Why So Many Successful People Still Feel Unfulfilled

Why So Many Successful People Still Feel Unfulfilled

In this episode This is one of those conversations that really stays with you. In this episode, we explore what it truly means to create a life and career that feel aligned—not driven by pressure, bu...

14 Apr 58min

Populärt inom Utbildning

historiepodden-se
rss-bara-en-till-om-missbruk-medberoende-2
det-skaver
harrisons-dramatiska-historia
roda-vita-rosen
nu-blir-det-historia
johannes-hansen-podcast
allt-du-velat-veta
sektledare
rss-viktmedicinpodden
i-vantan-pa-katastrofen
rss-foraldramotet-bring-lagercrantz
rss-basta-livet
not-fanny-anymore
rss-max-tant-med-max-villman
rss-relationsrevolutionen
sex-pa-riktigt-med-marika-smith
sa-in-i-sjalen
rss-sjalsligt-avkladd
rikatillsammans-om-privatekonomi-rikedom-i-livet