114. Surviving the Long Endometriosis Diagnosis Journey + Becoming a Helpline Supporter

114. Surviving the Long Endometriosis Diagnosis Journey + Becoming a Helpline Supporter

In today’s episode, we sit down with Angela from the UK, an endometriosis warrior, author, and dedicated volunteer with Endometriosis UK.

Angela opens up about her long and winding path to diagnosis, the years of symptoms that were dismissed, and the moment she finally felt seen and believed.

We talk about what it means to navigate a condition that’s so often misunderstood, why patient support is absolutely vital, and how her own journey inspired her to help others through the Endometriosis UK helpline. Angela also shares the process of writing her book and the healing that came with telling her story.📘 You can find Angela’s book here:⁠https://angelanewland.ampbk.com/⁠Sign up to be on the podcast and book list:⁠⁠⁠⁠⁠https://substack.com/@melissabou?⁠⁠⁠⁠⁠Want to be on the show? Email us: ⁠⁠⁠⁠⁠podcastthecycle@gmail.com⁠⁠⁠⁠⁠Looking for help on your podcast: ⁠⁠⁠https://www.inpostmedia.com/⁠⁠⁠⁠⁠Follow for clips of the show or DM us: Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ / ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ / thecycleendopodcast⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ YouTube: ⁠⁠⁠⁠⁠ / @melissabou Thank you for listening to and supporting this podcast. We need awareness about this disease. If you want to be on the podcast or have feedback, please reach out via my website, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.melissaboudreau.com.⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Thank you SO much for your support and time.📢 Don’t forget to subscribe & leave a review! Your support helps us reach more people and keep advocating for better endometriosis care.

Avsnitt(119)

100. Uncovering Hidden Diagnoses: An Endometriosis Journey Leading to a Brain Tumor Discovery

100. Uncovering Hidden Diagnoses: An Endometriosis Journey Leading to a Brain Tumor Discovery

Join us this month as Tori courageously shares her powerful and inspiring journey. Despite not having the "typical" endometriosis symptoms, Tori’s search for answers led to a surprising and challenging diagnosis: a prolactinoma, a noncancerous brain tumor of the pituitary gland. In this episode, Tori opens up about her experience with endometriosis and the discovery of her prolactinoma, which causes the pituitary gland to produce excessive prolactin. This imbalance significantly affects levels of key sex hormones such as estrogen and testosterone, leading to various health impacts. We delve into the complexities of her dual diagnosis, discussing not only the medical aspects but also the profound emotional and psychological impacts. Tori’s story sheds light on fertility issues, the struggle for accurate diagnosis, and the resilience required to navigate such a journey. Tune in to hear Tori’s story of strength and hope, and gain valuable insights that could help others facing similar challenges. Want to watch the show on YouTube? ⁠⁠⁠⁠⁠⁠⁠⁠https://www.youtube.com/@MelissaBou⁠⁠⁠⁠⁠⁠⁠⁠ Follow for clips of the show: Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/thecycle.endopodcast/⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok: ⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@thecycleendopodcast⁠⁠⁠⁠⁠⁠⁠⁠⁠ Thank you for listening to and supporting this podcast. We need awareness about this disease. If you want to be on the podcast or have feedback, please reach out via my website, ⁠⁠⁠⁠⁠⁠⁠⁠www.melissaboudreau.com⁠⁠⁠⁠⁠⁠⁠⁠ or DM me @⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/melisbou/⁠⁠⁠⁠⁠⁠⁠⁠ Thank you SO much for your support and time. Please consider subscribing and writing us a 5-star review on Apple or Spotify podcasts. It helps us get more awareness and with guests agreeing to come on!

16 Aug 202443min

99. Ovarian cysts, led to her diagnosis but her journey to find the right information & treatment was not easy.

99. Ovarian cysts, led to her diagnosis but her journey to find the right information & treatment was not easy.

Join us today with Rachele, who talks about her endometriosis journey. She explains how ovarian cysts led her to endo. However, the journey was filled with old myths and misinformation (very recently, in time, these old myths still exist) until she found the correct information and treatment plan that worked for her. Want to watch the show on YouTube? ⁠⁠⁠⁠⁠⁠⁠https://www.youtube.com/@MelissaBou⁠⁠⁠⁠⁠⁠⁠ Follow for clips of the show: Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/thecycle.endopodcast/⁠⁠⁠⁠⁠⁠⁠⁠ TikTok: ⁠⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@thecycleendopodcast⁠⁠⁠⁠⁠⁠⁠⁠ Thank you for listening to and supporting this podcast. We need awareness about this disease. If you want to be on the podcast or have feedback, please reach out via my website, ⁠⁠⁠⁠⁠⁠⁠www.melissaboudreau.com⁠⁠⁠⁠⁠⁠⁠ or DM me @⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/melisbou/⁠⁠⁠⁠⁠⁠⁠ Thank you SO much for your support and time. Please consider subscribing and writing us a 5-star review on Apple or Spotify podcasts. It helps us get more awareness and with guests agreeing to come on!

19 Juli 202450min

98. Endometriosis Worldwide: Treatment, Views, and the Power of Support

98. Endometriosis Worldwide: Treatment, Views, and the Power of Support

Join Whitney on this month's episode as she takes us on a global journey through her experiences living with endometriosis in various countries. Whitney shares her personal insights on the varying treatments she received (or didn’t receive) and underscores the crucial role of having a supportive partner and community in navigating this challenging condition. Don’t miss her inspiring and eye-opening story! Want to watch the show on YouTube? ⁠⁠⁠⁠⁠⁠https://www.youtube.com/@MelissaBou⁠⁠⁠⁠⁠⁠ Follow for clips of the show: Instagram: ⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/thecycle.endopodcast/⁠⁠⁠⁠⁠⁠⁠ TikTok: ⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@thecycleendopodcast⁠⁠⁠⁠⁠⁠⁠ Thank you for listening to and supporting this podcast. We need awareness about this disease. If you want to be on the podcast or have feedback, please reach out via my website, ⁠⁠⁠⁠⁠⁠www.melissaboudreau.com⁠⁠⁠⁠⁠⁠ or DM me @⁠⁠⁠⁠⁠⁠https://www.instagram.com/melisbou/⁠⁠⁠⁠⁠⁠ Thank you SO much for your support and time. Please consider subscribing and writing us a 5-star review on Apple or Spotify podcasts. It helps us get more awareness and with guests agreeing to come on!

14 Juni 20241h

97. Extreme Mid- Cycle Pain, Long waiting lists in Canada, Amazing surgery experience in....Romania.

97. Extreme Mid- Cycle Pain, Long waiting lists in Canada, Amazing surgery experience in....Romania.

Join Billie Jo on the show as we talk all about the long wait to get diagnosed, medical research as well as bias, painful poops, the long wait for surgery in Canada, and her fantastic surgery experience in Romania. Want to watch the show on YouTube? ⁠⁠⁠⁠⁠https://www.youtube.com/@MelissaBou⁠⁠⁠⁠⁠ Follow for clips of the show: Instagram: ⁠⁠⁠⁠⁠⁠https://www.instagram.com/thecycle.endopodcast/⁠⁠⁠⁠⁠⁠ TikTok: ⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@thecycleendopodcast⁠⁠⁠⁠⁠⁠ Thank you for listening to and supporting this podcast. We need awareness about this disease. If you want to be on the podcast or have feedback, please reach out via my website, ⁠⁠⁠⁠⁠www.melissaboudreau.com⁠⁠⁠⁠⁠ or DM me @⁠⁠⁠⁠⁠https://www.instagram.com/melisbou/⁠⁠⁠⁠⁠ Thank you SO much for your support and time. Please consider subscribing and writing us a 5-star review on Apple or Spotify podcasts. It helps us get more awareness and with guests agreeing to come on!

17 Maj 20241h 44min

96. Heavy Periods, Retinal Migraines & bad side affects from Birth Control, Horrible Pain & finally being listened to.

96. Heavy Periods, Retinal Migraines & bad side affects from Birth Control, Horrible Pain & finally being listened to.

Join Skyler, 23 years old. In this episode, we chat about baking, making content, and endo. We talked about horrible pain and how the pill made for her had terrible side effects. She shares details of her symptoms and how it felt to finally be herd from a doctor. Want to watch the show on YouTube? ⁠⁠⁠⁠https://www.youtube.com/@MelissaBou⁠⁠⁠⁠ Follow for clips of the show: Instagram: ⁠⁠⁠⁠⁠https://www.instagram.com/thecycle.endopodcast/⁠⁠⁠⁠⁠ TikTok: ⁠⁠⁠⁠⁠https://www.tiktok.com/@thecycleendopodcast⁠⁠⁠⁠⁠ Thank you for listening to and supporting this podcast. We need awareness about this disease. If you want to be on the podcast or have feedback, please reach out via my website, ⁠⁠⁠⁠www.melissaboudreau.com⁠⁠⁠⁠ or DM me @⁠⁠⁠⁠https://www.instagram.com/melisbou/⁠⁠⁠⁠ Thank you SO much for your support and time. Please consider subscribing and writing us a 5-star review on Apple or Spotify podcasts. It helps us get more awareness and with guests agreeing to come on!

19 Apr 202454min

95. Early education about Endo, hormones, health care delay & struggle in the UK.

95. Early education about Endo, hormones, health care delay & struggle in the UK.

Nikki is from the UK and is a mindset coach. She shares her journey with endometriosis, as well as how important hormones are. How her daughters rare condition helped her discover her passion for advocacy and fighting the the right medical care. We talk about so much more. Find the programs she mentioned here: https://www.ijustdontknow.org/ Want to watch the show on YouTube? ⁠⁠⁠https://www.youtube.com/@MelissaBou⁠⁠⁠ Follow for clips of the show: Instagram: ⁠⁠⁠⁠https://www.instagram.com/thecycle.endopodcast/⁠⁠⁠⁠ TikTok: ⁠⁠⁠⁠https://www.tiktok.com/@thecycleendopodcast⁠⁠⁠⁠ Thank you for listening to and supporting this podcast. We need awareness about this disease. If you want to be on the podcast or have feedback, please reach out via my website, ⁠⁠⁠www.melissaboudreau.com⁠⁠⁠ or DM me @⁠⁠⁠https://www.instagram.com/melisbou/⁠⁠⁠ Thank you SO much for your support and time. Please consider subscribing and writing us a 5-star review on Apple or Spotify podcasts. It helps us get more awareness and with guests agreeing to come on!

15 Mars 202451min

94. Was it really her appendix or was it endo...UTI's..self diagnosis and more

94. Was it really her appendix or was it endo...UTI's..self diagnosis and more

Fenella joins us from the UK on today's show. We chat about how she thinks her appendix may have been endo, chronic UTI, and the shame around them, as well as how she was diagnosed from a podcast. And so much more! Things she mentioned to check out: Podcasts: ⁠28 days later ⁠⁠How Do You Cope?⁠ ⁠Woman’s Hour (specific episode about appendix)⁠⁠Room 5: series 1 ep7⁠ Books: Period (it’s about bloody time) - Emma Barnett You can have a better period - Le’Nise Brothers Invisible Women - Varoline Criado Perez Menopausing - Davina McCall Self-help for your Nerves - Dr Claire Weeks Another book I found amazing, talking more about mental health, very specifically postnatally, but still a remarkable read is - ‘What have I done? - Laura Dockrill  Want to watch the show on YouTube? ⁠⁠⁠⁠https://www.youtube.com/@MelissaBou⁠⁠⁠⁠ Follow for clips of the show: Instagram: ⁠⁠⁠⁠⁠https://www.instagram.com/thecycle.endopodcast/⁠⁠⁠⁠⁠ TikTok: ⁠⁠⁠⁠⁠https://www.tiktok.com/@thecycleendopodcast⁠⁠⁠⁠⁠ Thank you for listening to and supporting this podcast. We need awareness about this disease. If you want to be on the podcast or have feedback, please reach out via my website, ⁠⁠⁠⁠www.melissaboudreau.com⁠⁠⁠⁠ or DM me @⁠⁠⁠⁠https://www.instagram.com/melisbou/⁠⁠⁠⁠ Thank you SO much for your support and time. Please consider subscribing and writing us a 5-star review on Apple or Spotify podcasts. It helps us get more awareness and with guests agreeing to come on!

17 Feb 20241h 6min

93. 20 years to get diagnosed with endometriosis, what helped, and how it influenced a career path.

93. 20 years to get diagnosed with endometriosis, what helped, and how it influenced a career path.

*** please note we had some audio issues, I am so sorry about this**** Join us today to chat with Samm, an endo, Lyme, and celiac warrior. She chats about how, even after being diagnosed with Lyme and Celiac, she still knew something was wrong and how her pain progressed daily. Learn what she did to help feel better and how it helped her in her current businesses. Where to find Samm: @matchanude + @sammssimplelife on Instagram, FB @matchanude - LinkedIn Samantha Coffin + Matcha Nude. We also have a YouTube account and are @ilovematchanuse on TikTok Want to watch the show on YouTube? ⁠⁠https://www.youtube.com/@MelissaBou⁠⁠ Follow for clips of the show: Instagram: ⁠⁠⁠https://www.instagram.com/thecycle.endopodcast/⁠⁠⁠ TikTok: ⁠⁠⁠https://www.tiktok.com/@thecycleendopodcast⁠⁠⁠ Thank you for listening to and supporting this podcast. We need awareness about this disease. If you want to be on the podcast or have feedback, please reach out via my website, ⁠⁠www.melissaboudreau.com⁠⁠ or DM me @⁠⁠https://www.instagram.com/melisbou/⁠⁠ Thank you SO much for your support and time. Please consider subscribing and writing us a 5-star review on Apple or Spotify podcasts. It helps us get more awareness and with guests agreeing to come on!

29 Jan 202455min

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