pt3: squish squash brick wall

pt3: squish squash brick wall

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get into the hyperbaric chamber we're paying impossibilities that were just going to make me worse. The kind of long-term pain especially the fibromyalgia colliding with the dyslexia and the architectural pain which creates a special kind of hell. And add to that the new motor on my scooter creating a high-pitched war which collides with the sound sensitivity portion of ME and fibro. And on top of that because of forces outside of his control haven't been able to see my physio for almost 6 weeks. And I haven't had this extent of pain nausea and pain nightmares since the COVID lockdown. now that of course got way worse because it was months. But even being three to four weeks late for physio means i have quite the cacophony of pain, amplified exhaustion, and loss of emotional resiliency

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Avsnitt(158)

medical instruction REST

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min

ADVOCACY

ADVOCACY

where I talk about layers and kinds of advocacy from medical to bureaucratic to systemic. personal advocacy and larger disability and disease advocacy. And also different kinds of advocacy and what I ...

25 Juli 48min

Music Magic

Music Magic

alive in the field episode from the music festival I've been talking about. I did manage to make it well hopefully I can do the whole thing. at least I'm here mid-afternoon on Saturday so I will enjoy...

18 Juli 8min

I'm scared

I'm scared

where I talk about an aha moment around why not being able to pull my brain together as I describe in the previous episode freaked me out so much. Because if I can't be eloquent then that will be a de...

14 Juli 5min

blArgh

blArgh

The perils of tired brain and trying to be at magical Ted talk in a volunteer situation(see my project hail Mary episode). le sigh

14 Juli 4min

my Project Hail Mary

my Project Hail Mary

where I talk about my lived experience life and death against seeming insurmountable odds resonance with the movie Project Hail Mary some of the things I referenced today are the latest GoFundMe updat...

11 Juli 13min

DOCUMENT done! woohoo

DOCUMENT done! woohoo

finally! The document is done. sent to ministers and ministries here in BC and to the same media we sent the press release for the petition presentation. obviously it was sent along with the petition ...

3 Juli 12min

*the DOCUMENT*

*the DOCUMENT*

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking ev...

20 Juni 32min

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