Day 3 - Bexi Lobo, PhD - Networking and Advocacy - Making a Difference Together

Do you ever leave a doctor's appointment feeling rushed, unheard, or more confused than when you arrived? The emotional toll of dismissal and confusing medical jargon can leave Sjogren's patients feeling powerless and too stunned to speak up. This session is designed to change that.Join Board Certified Patient Advocate, author, and fellow Sjogren's patient Kristina Kelly as she shares her top 10 communication "hacks" for tough talks with docs. Built from the actionable section of her book, "How to Be a Badass in a Broken Healthcare System," this presentation gives you the practical scripts, plug-and-play tactics, and mindset shifts you need to advocate for yourself clearly, calmly, and confidently.Watch now to learn how to respond when you're being dismissed, prepare for high-stakes appointments without blanking out, and walk away with a plan of action to find your voice and use it like a badass.SESSION IN A GLANC00:00 Introduction: Welcome to Hack Your Healthcare01:39 Hack 1: Trash Talk Gets You Nowhere03:19 Hack 2: Ask Clarifying Questions04:22 Hack 3: Don't Let Them Rush You07:05 Hack 4: Beware the 'But'07:52 Hack 5: Be Honest, Not a Storyteller10:12 Hack 6: Say What You Need (The Goal-Setting Statement)13:14 Hack 7: Think Bullseye, Not Buckshot15:10 Hack 8: Don't Be Afraid to Repeat Yourself16:20 Hack 9: Practice the Art of Listening17:34 Hack 10: Be Intentional, Not Impulsive19:00 Real Talk from a Fellow Patient: You're Not Failing, You're Learning19:50 Where to Find Support: Communities & Patient AdvocatesABOUT KRISTINA KELLY, BCPAKristina Kelly is a board certified patient advocate and the author of How to Be a Badass in a Broken Healthcare System. After battling undiagnosed autoimmune symptoms for years, she was formally diagnosed with seronegative Sjögren’s and now uses her professional background and lived experience to help other patients navigate the diagnostic maze with more confidence and less burnout. Through her business, Little Engine Patient Advocacy, she supports chronically ill patients by teaching practical advocacy skills and creating easy-to-use tools for communication.CONNECT WITH KRISTINA KELLYWebsite → https://littleenginepatientadvocacy.com/Instagram → https://www.instagram.com/littleenginepatientadvocacy/Facebook → https://www.facebook.com/profile.php?id=61570805397823TikTok → https://www.tiktok.com/@littleengineadvocacyPresentation Slides → https://drive.google.com/file/d/1ENx1cut_cOuKCavMOo6UazEWN1rWoUa8/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.