4th Virtual Sjogren's Summit 202519 Juli 2025

Day 3 - Kristina Kelly, BCPA - Hack Your Healthcare_ Top 10 Tips for Tough Talks with Docs

Do you ever leave a doctor's appointment feeling rushed, unheard, or more confused than when you arrived? The emotional toll of dismissal and confusing medical jargon can leave Sjogren's patients feeling powerless and too stunned to speak up. This session is designed to change that.Join Board Certified Patient Advocate, author, and fellow Sjogren's patient Kristina Kelly as she shares her top 10 communication "hacks" for tough talks with docs. Built from the actionable section of her book, "How to Be a Badass in a Broken Healthcare System," this presentation gives you the practical scripts, plug-and-play tactics, and mindset shifts you need to advocate for yourself clearly, calmly, and confidently.Watch now to learn how to respond when you're being dismissed, prepare for high-stakes appointments without blanking out, and walk away with a plan of action to find your voice and use it like a badass.SESSION IN A GLANC00:00 Introduction: Welcome to Hack Your Healthcare01:39 Hack 1: Trash Talk Gets You Nowhere03:19 Hack 2: Ask Clarifying Questions04:22 Hack 3: Don't Let Them Rush You07:05 Hack 4: Beware the 'But'07:52 Hack 5: Be Honest, Not a Storyteller10:12 Hack 6: Say What You Need (The Goal-Setting Statement)13:14 Hack 7: Think Bullseye, Not Buckshot15:10 Hack 8: Don't Be Afraid to Repeat Yourself16:20 Hack 9: Practice the Art of Listening17:34 Hack 10: Be Intentional, Not Impulsive19:00 Real Talk from a Fellow Patient: You're Not Failing, You're Learning19:50 Where to Find Support: Communities & Patient AdvocatesABOUT KRISTINA KELLY, BCPAKristina Kelly is a board certified patient advocate and the author of How to Be a Badass in a Broken Healthcare System. After battling undiagnosed autoimmune symptoms for years, she was formally diagnosed with seronegative Sjögren’s and now uses her professional background and lived experience to help other patients navigate the diagnostic maze with more confidence and less burnout. Through her business, Little Engine Patient Advocacy, she supports chronically ill patients by teaching practical advocacy skills and creating easy-to-use tools for communication.CONNECT WITH KRISTINA KELLYWebsite → https://littleenginepatientadvocacy.com/Instagram → https://www.instagram.com/littleenginepatientadvocacy/Facebook → https://www.facebook.com/profile.php?id=61570805397823TikTok → https://www.tiktok.com/@littleengineadvocacyPresentation Slides → https://drive.google.com/file/d/1ENx1cut_cOuKCavMOo6UazEWN1rWoUa8/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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Avsnitt(25)

Day 3 - Kara Wada, MD - Beyond Medication: The 3-Visit Immune Reset

What if you could achieve the results of 3-5 years of traditional allergy shots in just three visits over two months? For Sjogren's patients stuck in a cycle of inflammation, where allergies fuel auto...

19 Juli 202533min

Day 3 - Kara Wada, MD & Janet Steins - Roundtable: "The Clinical Trial Journey: Patient Perspectives & Insights"

What is it really like to be in a clinical trial for a new Sjogren's medication? What are the tests like? What's the time commitment? And is it worth it?In this unique and candid roundtable discussion...

19 Juli 202554min

Day 3 - Lilly Stairs - The Power of Patient Communities & Network Advocacy

What does ambition look like when you're living with a chronic condition? How do you build a vibrant life and career when your body requires you to work smarter, not harder?In this candid and inspirin...

19 Juli 202525min

Day 3 - Delia Chiaramonte, MD - Caring for Someone You Love Without Losing Yourself

Caregivers often struggle to remain empathetic and compassionate without becoming depleted and overwhelmed, leading to guilt, resentment, and burnout. But it doesn't have to be this way.In this deeply...

19 Juli 202526min

Day 3 - Bexi Lobo, PhD - Networking and Advocacy - Making a Difference Together

19 Juli 202523min

Day 3 - Jillian Rigert, DMD, MD, ACC, TIPC- The Importance of Compassionate, Trauma-Informed Care To Cultivate Healing

Autoimmune conditions and their symptoms are often exacerbated by trauma and stress. While we are often taught to internalize our emotions and stress, this can lead to self-criticism that only fuels t...

19 Juli 202525min

Day 3 - Bianca Campbell - Intergenerational Trauma AND Resilience for Stress Reduction

What if the patient you see as "difficult" is actually traumatized? For many living with Sjogren's, years of medical dismissal, normal lab results despite debilitating symptoms, and being told "it's a...

19 Juli 202524min