Terrible Tightrope

Terrible Tightrope

where I talk about the push me pull you of my mitochondria requiring rest and any hope of survival by getting governmental change or enough GoFundMe to stay alive being about me doing advocacy and on top of all of that the day-to-day living things of housekeeping and going to treatments. It's all more energy I have and yet it all needs to be done. And trying to navigate the competing needs of these things is like a terrible tightrope


Links I talked about in the episode


Sick times republish of op-ed March 20th 2025

https://l.gourl.es/l/56898fa8ccf060b8bf79b817ad9fabd986f4a62f?u=11010884


GoFundMe

https://gofund.me/6d981312


Email campaign CTV Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

Full info in gfm update https://gofund.me/6d981312



Housekeeping GoFundMe

https://gofund.me/73aeb36e5


Petition Open for a second round of signatures

https://bit.ly/Marcia_petition


TheAtlantic article just came out that includes me(It was a gift link and now that seems to have expired but hopefully you can find a way to see it) https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-policy/683562/?gift=yKNFI6bZtyj8clr3yQtLYCSwFBjNIwPzg10Axz0GrTA&utm_source=copy-link&utm_medium=social&utm_campaign=share by @elainaplott I'm so grateful that they linked to my podcast. For Atlantic readers As it doesn't talk very much about the specifics of my situation or my disease I made a little primer for them https://open.spotify.com/show/0oNLwzI1qZvvZ51bau1aNi

Avsnitt(142)

Easter musings

Easter musings

it's Easter morning, and I talk about some of the good things that have happened but also as per usual document the obstacles that are ever present I talk about this housekeeping GoFundMe a friend set...

5 Apr 34min

under pressure

under pressure

I was trying to figure out what to call this and I think that David Bowie Queen song under pressure pretty much describes it I think. So I'm continuing to try to document the insanity of the measure o...

24 Mars 38min

Sick Times republish of my op-ed!

Sick Times republish of my op-ed!

A quick update as the sick times have republished my op-ed. I'm a bit addle brained so you're not getting a lot much in the way of intelligence but it does document some of the brain fog issues Sick t...

20 Mars 6min

Light In Darkness

Light In Darkness

today I don't just document the grinding difficulty but my memory banks pulled up some really nice light and darkness times from when I was little and I also talk about some really nice things from so...

18 Mars 20min

Leadership And Power Musings

Leadership And Power Musings

where I talk about how I feel about My power and the leadership roles I have been in and the leadership roles I may be in in the near future depending on how the email campaign goes speaking of which ...

16 Mars 22min

pt 6: Ides of March squish squash

pt 6: Ides of March squish squash

where I talk about how rest day is rarely just the rest day because all the stuff I've been compartmentalizing comes out and wants to be processed. which is not very restful. having my body not moving...

16 Mars 13min

pt5: pi Day squish squash continues

pt5: pi Day squish squash continues

It's pi day. unfortunately I don't have any actual pie to celebrate with. But I hope you're having some nerdy fun. For me it's whimsy as I'm still experiencing squish squash. Still documenting what it...

15 Mars 15min

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