Terrible Tightrope

where I talk about the push me pull you of my mitochondria requiring rest and any hope of survival by getting governmental change or enough GoFundMe to stay alive being about me doing advocacy and on top of all of that the day-to-day living things of housekeeping and going to treatments. It's all more energy I have and yet it all needs to be done. And trying to navigate the competing needs of these things is like a terrible tightrope

Links I talked about in the episode

Sick times republish of op-ed March 20th 2025

https://l.gourl.es/l/56898fa8ccf060b8bf79b817ad9fabd986f4a62f?u=11010884

GoFundMe

https://gofund.me/6d981312

Email campaign CTV Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

Full info in gfm update https://gofund.me/6d981312

Housekeeping GoFundMe

https://gofund.me/73aeb36e5

Petition Open for a second round of signatures

https://bit.ly/Marcia_petition

TheAtlantic article just came out that includes me(It was a gift link and now that seems to have expired but hopefully you can find a way to see it) https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-policy/683562/?gift=yKNFI6bZtyj8clr3yQtLYCSwFBjNIwPzg10Axz0GrTA&utm_source=copy-link&utm_medium=social&utm_campaign=share by @elainaplott I'm so grateful that they linked to my podcast. For Atlantic readers As it doesn't talk very much about the specifics of my situation or my disease I made a little primer for them https://open.spotify.com/show/0oNLwzI1qZvvZ51bau1aNi

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(165)

Apocalypse Nightmare

a month away from running out of GoFundMe. at least that's the amount of money I for sure know gets me to mid-november. I don't know if I can stretch it further especially as I'm still bouncing back f...

19 Okt 18min

Roadblocks and bright spots

where I talk about the push me pull you of me meaning emotional balance versus Health balance and struggling of course with financial deficits that make both of those hard. and then roadblocking all o...

14 Okt 19min

Melty Downy

The perils of attempting to mask how sick I am and how scared I am about it but at the same time needing to be able to compartmentalize there's a bright light though. we (myself plus two wonderful vol...

30 Sep 22min

Healing Crisis

it just realized I didn't really explain in this episode what I mean by healing crisis. for me it's been when a treatment makes some symptoms worse but ultimately improves everything. things get a lit...

23 Sep 16min

MASKING

where I talk about masking pain and fear. what masking is how it works. how it can trigger nightmares as it has done this evening. and I talk about how the death of my mobility scooter a couple of wee...

18 Sep 41min

Grace

I was already thinking about Grace but then rewatching the documentary #YOU ARE HERE: A COME FROM AWAY STORY about the planes that landed in gander Newfoundland on September 11th. Being from Newfoundl...

12 Sep 37min

I'M BACK

I'm back . my August hiatus from advocacy (because I was starting to melt down out of the pressure of a difficulty coming from so many angles) is over. although it wasn't a hiatus from a whole bunch o...

2 Sep 16min

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min