housekeeping, deep clean part one

housekeeping, deep clean part one

Because of the amazing efforts of my friend and the GoFundMe she set up to have my apartment deep cleaned We started today! So I thought I would document that for the donators to that particular gfm. But I also thought regular listeners and donators to my GoFundMe for the treatments that keep me alive would like to hear about it. Especially how it is such a critical support. And also some of the internalized ableism and disability bias I have going on around housekeeping. some part of me still thinks that I can do it which isn't true. And empirical evidence shows it isn't true. And outrageous pain and exhaustion shows that it isn't true. But still some part of me believes that.


anyway the child like delight I feel at having just this beginning part of getting my apartment clean made the Also delighted. They said it made them feel really appreciated Especially that I made up the clean floor song lol

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Avsnitt(158)

medical instruction REST

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min

ADVOCACY

ADVOCACY

where I talk about layers and kinds of advocacy from medical to bureaucratic to systemic. personal advocacy and larger disability and disease advocacy. And also different kinds of advocacy and what I ...

25 Juli 48min

Music Magic

Music Magic

alive in the field episode from the music festival I've been talking about. I did manage to make it well hopefully I can do the whole thing. at least I'm here mid-afternoon on Saturday so I will enjoy...

18 Juli 8min

I'm scared

I'm scared

where I talk about an aha moment around why not being able to pull my brain together as I describe in the previous episode freaked me out so much. Because if I can't be eloquent then that will be a de...

14 Juli 5min

blArgh

blArgh

The perils of tired brain and trying to be at magical Ted talk in a volunteer situation(see my project hail Mary episode). le sigh

14 Juli 4min

my Project Hail Mary

my Project Hail Mary

where I talk about my lived experience life and death against seeming insurmountable odds resonance with the movie Project Hail Mary some of the things I referenced today are the latest GoFundMe updat...

11 Juli 13min

DOCUMENT done! woohoo

DOCUMENT done! woohoo

finally! The document is done. sent to ministers and ministries here in BC and to the same media we sent the press release for the petition presentation. obviously it was sent along with the petition ...

3 Juli 12min

*the DOCUMENT*

*the DOCUMENT*

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking ev...

20 Juni 32min

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