Empowering People with ALS through Research, Advocacy, and Awareness -  GOALS Podcast with Nadia Sethi

Empowering People with ALS through Research, Advocacy, and Awareness - GOALS Podcast with Nadia Sethi

Nadia Sethi joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience caring for a loved one with ALS and how everyone can be empowered through ALS awareness, education, and research. In this episode, Nadia discusses some of the challenges of navigating hope and caution, as well as how everyone can participate in scientific advancement. Nadia has been involved with ALS TDI and I AM ALS and she is now working with North Star ALS at https://www.northstarals.org/

Our ALS mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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Avsnitt(69)

Understanding the Role of Physical Therapy with ALS - Shelly Lewis

Understanding the Role of Physical Therapy with ALS - Shelly Lewis

Shelly Lewis PT, DPT, EdD, has assisted thousands of people with ALS with compassionate and expert physical therapy work since 1999. She has been connected with the care team at ALS United Mid-Atlanti...

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Lessons in ALS, Stress, and Mental Health with Maria Malfi - ALS United Mid-Atlantic GOALS Podcast

Lessons in ALS, Stress, and Mental Health with Maria Malfi - ALS United Mid-Atlantic GOALS Podcast

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14 Juli 37min

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Taryn Norley, President and CEO of ALS Arizona, joins the ALS United Mid-Atlantic GOALS Podcast to discuss the work of serving the ALS community in Arizona and how it compares to other ALS United part...

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Inspiration and Hope in ALS Research - Brianna Lisi, MS joins the ALS United GOALS Podcast

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30 Juni 28min

Speech Therapy for ALS Patients - Josi Shimkus on the ALS United Mid-Atlantic GOALS Podcast

Speech Therapy for ALS Patients - Josi Shimkus on the ALS United Mid-Atlantic GOALS Podcast

Josi Shimkus, MA, CCC-SLP, Hackensack Meridian Health Jersey Shore University Medical Center, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her expertise and work assisting people with AL...

23 Juni 28min

United in Care - Cassy Adams Executive Director with ALS Northwest

United in Care - Cassy Adams Executive Director with ALS Northwest

Cassy Adams from  @ALSNorthwest  joins the ALS United Mid-Atlantic GOALS Podcast to discuss ALS care, research, and advocacy and how our partner organizations can collaborate to best serve the ALS com...

9 Juni 35min

ALS.Community and You - Jeff Oppenheimer on the ALS United Mid-Atlantic GOALS Podcast

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Jeff Oppenheimer understands the needs and challenges of ALS. His wife Shelbie was diagnosed with ALS in 1996 and together Jeff and Shelbie raised awareness and successfully advocated for millions of ...

26 Maj 30min

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