Laugh & the World laughs with you, Cry & you cry alone.
I AM MADELINE22 Apr 2023

Laugh & the World laughs with you, Cry & you cry alone.

I think the title sums it up. I pretty much put it all on the line about how I'm feeling about running out of money for treatments and supports at the end of May The picture is from easter where I followed the host of the games party's instructions and wore my Easter finest ;P. I think it kind of sums up the *laugh* part. How I survive on whimsy and compartmentalizing. (I keep forgetting to post up the go fund me link. I'm not sure if it will be clickable but you can copy and paste it if you are interested in donating or sharing the link https://gofund.me/cff39173 )

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Avsnitt(158)

medical instruction REST

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min

ADVOCACY

ADVOCACY

where I talk about layers and kinds of advocacy from medical to bureaucratic to systemic. personal advocacy and larger disability and disease advocacy. And also different kinds of advocacy and what I ...

25 Juli 48min

Music Magic

Music Magic

alive in the field episode from the music festival I've been talking about. I did manage to make it well hopefully I can do the whole thing. at least I'm here mid-afternoon on Saturday so I will enjoy...

18 Juli 8min

I'm scared

I'm scared

where I talk about an aha moment around why not being able to pull my brain together as I describe in the previous episode freaked me out so much. Because if I can't be eloquent then that will be a de...

14 Juli 5min

blArgh

blArgh

The perils of tired brain and trying to be at magical Ted talk in a volunteer situation(see my project hail Mary episode). le sigh

14 Juli 4min

my Project Hail Mary

my Project Hail Mary

where I talk about my lived experience life and death against seeming insurmountable odds resonance with the movie Project Hail Mary some of the things I referenced today are the latest GoFundMe updat...

11 Juli 13min

DOCUMENT done! woohoo

DOCUMENT done! woohoo

finally! The document is done. sent to ministers and ministries here in BC and to the same media we sent the press release for the petition presentation. obviously it was sent along with the petition ...

3 Juli 12min

*the DOCUMENT*

*the DOCUMENT*

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking ev...

20 Juni 32min

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