#29 - Mother of Boy with XXY - Chelsea Castonguay

Mother Kendra and Son Blake Dill talk about what it's like going thru high school. Blake is 16 years old, a sophomore, and plays in the high school band. After a routine checkup while pregnant, the doctors told her Blake had XXY.

16 Mars 202343min

Recently Ryan Bregante and Kelsey Fuglsby had the opportunity to be guest speakers at Hunter College in NYC. The Class is called Abnormal Psychology which has roughly 100 students. This video is just a few of the highlights from our hour-long conversation. 1-500 men are born with Klinefelter syndrome, a genetic condition in which males are born with an extra X chromosome. Ryan was born with XXY and is the founder and president of Living with XXY Nonprofit. Kelsey Fuglsby is the mother of a 14-year-old boy named Elliott, diagnosed at ten years old. Only 25% of our community will receive a diagnosis. 75% will die, never knowing. You can find the video highlights HERE. For more information, please visit: https://livingwithxxy.org/

11 Mars 20231h 11min

Charlie Plaisance got married when he was 27 and felt old enough to start trying for kids immediately. After trying for some time, he and his wife decided to get testing done. After giving a sperm sample, charlie learned he had three immobile sperm and later found out he would be diagnosed with Klinefelter syndrome (47 XXY). Charlie and his wife ended up trying Micro-Tese and IVF, which was a success. They are three amazing and unique kids and their family is complete for now. www.livingwithxxy.org

9 Mars 202331min

This podcast is from a recent speaking engagement at New York University. The class is applied psychology, and the course is Sexual Identities Across the Lifespan. Ryan Bregante was born with Klinefelter syndrome and is the founder and president of Living with XXY. Kelsey Fuglsby is a mother to a 13-year-old boy, Elliott, who was diagnosed with XXY after birth.

2 Mars 20231h 8min

Ted Clark was concerned about the size of his testicles when his girlfriend, a nurse, said they appeared smaller. Going to the doctor with his concerns, his doctor said there might be a tumor in his brain suppressing the growth. After ruling that out, more testing was ordered, and Ted discovered he has Mosaic Klinefelter syndrome (47 XXY). Ted shares the details of his fertility journey. After a successful Micro-Tese and IVF, he now has a beautiful daughter. www.livingwithxxy.org

16 Feb 202337min

Richard Martinez jumps right into sharing the details about his life while trying to have kids with his wife. Many questions came up on why nothing was happening. After a diagnosis of Klinefelter syndrome (47 XXY), Richard and his wife went with donor sperm. Richard shares his personal experience about his diagnosis and why sharing your story matters. They have two twin girls. www.livingwithxxy.org

9 Feb 202340min

Matt Dalley is 25 years old and living in Provo, Utah. After getting married at 21, Matt and his wife Katie wanted to be young parents. A year of trying with no luck led the doctors to start testing his wife. Matt ended up going to the doctor with a varicose vein in his scrotum, which led him to a sperm test. Ultimately finding out that he had Klinefelter syndrome. www.livingwithxxy.org

2 Feb 202354min

Ryan Turesson is from Brisbane, Australia. In 2007, he was trying for kids with his partner. Nothing was happening, so she went in for fertility testing. Her tests returned, saying nothing was wrong. So Ryan went in for testing and later found out he had Klinefelter syndrome. Learning he was sterile and couldn't have kids was devastating, sending him into a dark depression. They decided to do donor sperm since adoption in Australia is extremely difficult. Ryan is now a father to two unique and wonderful boys. www.livingwithxxy.org

26 Jan 202351min