World Haemophilia Day | How the UK Community Adapted to Change
Haemcast17 Apr 2021

World Haemophilia Day | How the UK Community Adapted to Change

"Adapting to Change, sustaining care in a new world." That's the theme for World Haemophilia Day this year and in this special episode, Luke Pembroke, Haemnet Comms Officer, speaks with members of the UK Bleeding Disorder community about how they have had to adapt to change during the past year in response to the challenges faced.

Featured guests include:

  • Haemophilia Nurse Specialist Debra Pollard on conducting clinics from home whilst shielding
  • Patient advocate and research fellow Rich Gorman on moving across the country and not yet meeting his new haemophilia team in person!
  • Haemnet's master of "creative interference" gives us the low down on Project Phoenix (www.haemnet.com/phoenix)
  • Nurse Specialist, April Jones tells us about the challenges the Newcastle Haemophilia team faced with the centre having to relocate
  • Lead Clinical Nurse Specialist, Wandai Maposa recollects the ghost town of Tooting mid-pandemic and how scary it was to see members of his team redeployed to ITU.

Thank you to our sponsors who make Haemcast possible.

Avsnitt(38)

What does ageing well with haemophilia look like? | featuring Dr William McKeown and Randall Curtis

What does ageing well with haemophilia look like? | featuring Dr William McKeown and Randall Curtis

They say old age isn't so bad when you consider the alternative... In this episode, host Luke Pembroke (Haemnet's Director of Community Engagement) is joined by community members Dr William McKeown (...

21 Mars 202338min

International Womens Day 2023 - The challenges faced by women in the bleeding disorders community ft. Dawn Rotellini, NHF

International Womens Day 2023 - The challenges faced by women in the bleeding disorders community ft. Dawn Rotellini, NHF

In this International Women's Day episode of Haemcast, two influential women leaders in the community, host Dr Kate Khair and Dawn Rotellini of the National Hemophilia Foundation (USA) discuss the cha...

8 Mars 202335min

Shared decision making in an evolving treatment landscape for haemophilia and bleeding disorders ft. Dr Len Valentino, CEO National Hemophilia Foundation

Shared decision making in an evolving treatment landscape for haemophilia and bleeding disorders ft. Dr Len Valentino, CEO National Hemophilia Foundation

"Shared decision making" has quickly become the new phrase bandied about at event and conferences within the haemophilia community. But what does shared decision making in haemophilia and bleeding dis...

20 Feb 202329min

Beyond approval | Considerations and Challenges in Access to Gene Therapy featuring Nicola Redfern

Beyond approval | Considerations and Challenges in Access to Gene Therapy featuring Nicola Redfern

In this episode of Haemcast, host Dr Kate Khair speaks with Nicola Redfern, former UK General Manager and Northern European cluster lead at bluebird bio and experienced leader in the biopharmaceutical...

28 Nov 202236min

Gene Therapy, Liver Health and... cheese featuring Professor Graham Foster Professor of Hepatology at Queen Mary University of London and clinical lead for Hepatology at Barts Health

Gene Therapy, Liver Health and... cheese featuring Professor Graham Foster Professor of Hepatology at Queen Mary University of London and clinical lead for Hepatology at Barts Health

Professor Graham Foster (Professor of Hepatology at Queen Mary University of London and clinical lead for Hepatology at Barts Health) joins us in this episode of Haemcast to discuss considerations aro...

14 Okt 202227min

Tinkling the Ivories | Oral health in haemophilia and bleeding disorders ft. Alison Dougall, Professor/Consultant Dublin Dental University Hospital, Director of SCD doctorate programme Trinity College

Tinkling the Ivories | Oral health in haemophilia and bleeding disorders ft. Alison Dougall, Professor/Consultant Dublin Dental University Hospital, Director of SCD doctorate programme Trinity College

In this episode of Haemcast, our host Dr Kate Khair speaks with Alison Dougall, President of the International Association for Disability and Oral Health (iADH) and Consultant/Professor in Special Car...

22 Aug 202232min

Same but different; the challenges faced by the Glanzmann's Thrombasthenia community feat. The Glanzmann's Research Foundation

Same but different; the challenges faced by the Glanzmann's Thrombasthenia community feat. The Glanzmann's Research Foundation

Glanzmann's Thrombasthenia (GT) is a rare bleeding disorder, estimated to affect 1 in a million people. Compared to more "common" bleeding disorders such as hemophilia, GT receives a lot less attentio...

21 Juli 202234min

WHD African Update: Dr Kate Khair speaks to Agnes Kisakye of the Haemophilia Foundation of Uganda

WHD African Update: Dr Kate Khair speaks to Agnes Kisakye of the Haemophilia Foundation of Uganda

As we celebrate World Hemophilia Day, Dr Kate Khair and guest Agnes Kisakye talk about the Haemophilia Foundation of Uganda and its mission of ensuring access to all

17 Apr 202224min

Populärt inom Hälsa

somna-med-henrik
rss-bara-en-till-om-missbruk-medberoende-2
inga-beiga-morsor
rss-jossan-nina
alska-oss
rss-viktmedicinpodden
rss-vuxna-pa-latsas
johannes-hansen-podcast
angestpodden
sexnoveller-deluxe
not-fanny-anymore
sova-med-dan-horning
brottarbroder
rss-the-house-podcast-3
vinterpasset
rss-sjalsligt-avkladd
sa-in-i-sjalen
sag-det-bara
rss-basta-livet
rss-pa-insidan-med-bjorn-rudman