When being supported means feeling heard — Two tales from haemophilia mums
Haemcast’s special series in collaboration with Local families with bleeding disorders continues with a reflection on what makes the parents of children with haemophilia feel supported. Mums Melissa a...
29 Juli 30min
Ports, pressure and panic — Coping with haemophilia treatment challenges
In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, we look at some of the challenges that can arise when treating a child with haemophilia.Getti...
25 Juni 31min
"I'm the worrier in our relationship" — Being the partner of a person with a bleeding disorder
The next in our special collaboration between Haemcast and Local families with bleeding disorders focuses on the partners of people who live with haemophilia and von Willebrand disease. Anya, Emma and...
27 Maj 29min
"Everything's new with haemophilia" — Treatment choices and changes
When making choices about treatment for a bleeding disorder, for a child or for yourself, what matters most? In this episode of Haemcast’s special series in collaboration with Local families with blee...
30 Apr 29min
Sticky blood, teddies and teens — Talking to children about their bleeding disorder
When it comes to managing family life with a child who has a bleeding disorder, parents aren’t just caregivers – they’re organisers, advocates and educators. Alongside managing their child’s condition...
31 Mars 34min
Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard
The first in a special Haemcast series in collaboration with Local families with bleeding disorders, exploring aspects of family life.In this episode, members of Local families with bleeding disorders...
5 Mars 34min
Banana sap, mangos and factor IX — a Ugandan haemophilia B journey
Morris Okello lives in Northern Uganda. In this episode of Haemcast, he tells Dr Kate about the childhood experiences that eventually led to him being diagnosed with haemophilia B. As well as describi...
9 Okt 202525min
Quality of life in the balance: Helen Tate on living with Factor V deficiency
Dance teacher and Haemophilia Society trustee Helen Tate talks with Haemnet's Dr Kate Khair about living with Factor V deficiency, a rare bleeding disorder that affects around one in a million people....
21 Aug 202522min
