Living With PANDAS as a Teen: Tics, Seizures and Sudden OCD

Living With PANDAS as a Teen: Tics, Seizures and Sudden OCD

In Episode Two Lucy meets Jessica, a warm and courageous 14 year old with PANDAS. Her initial symptoms were tics and anxiety, but progressed to multiple non-epileptic seizures every day. She talks about having a "pet panda in her brain that causes havoc" and how her PANDAS diagnosis was the worst day of her life.

IVIg - Intravenous immunoglobulin - an immunotherapy that can help some people with PANS/PANDAS

EDS - Ehlers-Danlos syndrome is a disease that weakens the connective tissues of your body

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Avsnitt(24)

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

Dr Whelan is a rheumatologist from UCLA in California. He describes his discipline as almost the last port of call for many suffering from PANS/PANDAS but describes how his specialist understanding of...

18 Maj 56min

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

((Before I talk about this episode, I have a favour! Please scroll down - there is a survey link below - 20 minutes of your time could shape the future of therapy for this illness 💛 Thanks))This week...

4 Maj 56min

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg is the most well known advocate for immune mediated neuropsychiatric disorders with more than 15 million followers on TikTok (which I worked out is twice as many as Coldplay, people!) and 1m ...

12 Apr 56min

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

Dr Zoe Gillispie is one of the world's leading neuroimmune-psychiatric psychologists, working with children and families with PANS/PANDAS from her Californian practice. Here she shares insights and ex...

18 Mars 54min

Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

Michelle Newby thinks that Occupational Therapy should be the fourth pillar of PANS/PANDAS treatment, after controlling inflammation and infection and psychiatric and psychological help. She works clo...

28 Feb 46min

Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

"I want every single kid, every single teen, every single young adult, every single adult with PANS/PANDAS to realise what they are capable of because they are capable of so much more than their disor...

20 Feb 46min

Recovering From PANS/PANDAS: A Teenager’s Story of Hope

Recovering From PANS/PANDAS: A Teenager’s Story of Hope

In this episode of PansPandas Stories, host Lucy McDonald interviews Freya Shacklock, a 19-year-old who shares her inspiring journey of recovery from PANS-PANDAS, a condition that caused her severe me...

5 Dec 202550min

PANS Flares, Medication and Recovery | Dr Kiki Chang

PANS Flares, Medication and Recovery | Dr Kiki Chang

It has been a while since the last PANS PANDAS Stories and our return is marked by an interesting chat with Dr Kiki Chang. He has a long PP pedigree and now works privately in the States where he has ...

17 Nov 202549min

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