My Daughter Changed Overnight: A Father’s PANDAS Story

My Daughter Changed Overnight: A Father’s PANDAS Story

This week, Jo Joyner talks to Gareth Costello about his daughter Rose who went from a confident, popular girl, who loved school, to a shadow of her former self almost overnight. Gareth describes this change, as a "light switch" moment.

The trigger? A sore throat. He talks about rushing home from work to a changed child, the relief of being listened to by a GP, and how he is giving something back to the PANS/PANDAS community by fundraising.

Listen to how 12-year-old Rose is doing now, in Episode 3 of PANS/PANDAS Stories....


*****Coming up over the next few weeks - interviews with paediatrician, Dr Tim Ubhi, nutritionist and naturopath Lucinda Miller and Jessica's mother, Helen Huitson.*****

******We are planning Series Two of PANS/PANDAS Stories. Thanks to everyone who has responded to the poll. From your feedback, we know you want more chats with sufferers of PANS/PANDAS themselves as well as with experts. Please contact us, if you would like to share your story (DM on our Insta page please!)

*****We've also been asked for a Q&A session with experts and are working out the best way to do this. So again watch this space. ******

*****There is so much we want to do - including interviews with adults, as we know this isn't just a paediatric illness. Interviewees so far have had PANDAS, but IVs with PANS sufferers are also in the pipeline.

***** Thanks so much for your support. We can't do this without you, so please rate and follow us, to help spread the word, provide support to parents and sufferers, and raise awareness.*****

Lucy and Jo xxxx

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Avsnitt(24)

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

Dr Whelan is a rheumatologist from UCLA in California. He describes his discipline as almost the last port of call for many suffering from PANS/PANDAS but describes how his specialist understanding of...

18 Maj 56min

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

((Before I talk about this episode, I have a favour! Please scroll down - there is a survey link below - 20 minutes of your time could shape the future of therapy for this illness 💛 Thanks))This week...

4 Maj 56min

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg is the most well known advocate for immune mediated neuropsychiatric disorders with more than 15 million followers on TikTok (which I worked out is twice as many as Coldplay, people!) and 1m ...

12 Apr 56min

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

Dr Zoe Gillispie is one of the world's leading neuroimmune-psychiatric psychologists, working with children and families with PANS/PANDAS from her Californian practice. Here she shares insights and ex...

18 Mars 54min

Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

Michelle Newby thinks that Occupational Therapy should be the fourth pillar of PANS/PANDAS treatment, after controlling inflammation and infection and psychiatric and psychological help. She works clo...

28 Feb 46min

Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

"I want every single kid, every single teen, every single young adult, every single adult with PANS/PANDAS to realise what they are capable of because they are capable of so much more than their disor...

20 Feb 46min

Recovering From PANS/PANDAS: A Teenager’s Story of Hope

Recovering From PANS/PANDAS: A Teenager’s Story of Hope

In this episode of PansPandas Stories, host Lucy McDonald interviews Freya Shacklock, a 19-year-old who shares her inspiring journey of recovery from PANS-PANDAS, a condition that caused her severe me...

5 Dec 202550min

PANS Flares, Medication and Recovery | Dr Kiki Chang

PANS Flares, Medication and Recovery | Dr Kiki Chang

It has been a while since the last PANS PANDAS Stories and our return is marked by an interesting chat with Dr Kiki Chang. He has a long PP pedigree and now works privately in the States where he has ...

17 Nov 202549min

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