How Parents Can Support Children With PANS/PANDAS | Therapist Julie Cox

How Parents Can Support Children With PANS/PANDAS | Therapist Julie Cox

Julie Cox is the mother of all PANS PANDAS therapists and she has been working with these children and families for the last 20 years after her daughter got the illness. She has poured her personal and professional knowledge and compassion into her therapy work with sufferers. A big part of that is also coaching parents and families on how to survive when the going gets tough - as it frequently does due to the waxing and waning nature of the illness. Sound familiar?!

In this warm chat, Julie weaves in her personal experiences and professional expertise. Explaining how validation for parents is important, emphasising how therapists must work with these children differently and recommending lots of resources (Stephen Porges, Deb Dana, Dan Siegel and Dr Ross Greene).

I loved chatting with her and was sorry we ran out of time as we had so much to say. The good news is she has promised to come back later in the year. Thank you, Julie! For more information on her therapy practice in NY https://www.juliecox.org/pandas-pans-therapy-westchester-ny and her global 1:1 parent coaching sessions at www.parentingwithpans.com/coaching She is about to start a membership with video lessons and group support.


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Avsnitt(24)

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

Dr Whelan is a rheumatologist from UCLA in California. He describes his discipline as almost the last port of call for many suffering from PANS/PANDAS but describes how his specialist understanding of...

18 Maj 56min

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

((Before I talk about this episode, I have a favour! Please scroll down - there is a survey link below - 20 minutes of your time could shape the future of therapy for this illness 💛 Thanks))This week...

4 Maj 56min

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg is the most well known advocate for immune mediated neuropsychiatric disorders with more than 15 million followers on TikTok (which I worked out is twice as many as Coldplay, people!) and 1m ...

12 Apr 56min

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

Dr Zoe Gillispie is one of the world's leading neuroimmune-psychiatric psychologists, working with children and families with PANS/PANDAS from her Californian practice. Here she shares insights and ex...

18 Mars 54min

Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

Michelle Newby thinks that Occupational Therapy should be the fourth pillar of PANS/PANDAS treatment, after controlling inflammation and infection and psychiatric and psychological help. She works clo...

28 Feb 46min

Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

"I want every single kid, every single teen, every single young adult, every single adult with PANS/PANDAS to realise what they are capable of because they are capable of so much more than their disor...

20 Feb 46min

Recovering From PANS/PANDAS: A Teenager’s Story of Hope

Recovering From PANS/PANDAS: A Teenager’s Story of Hope

In this episode of PansPandas Stories, host Lucy McDonald interviews Freya Shacklock, a 19-year-old who shares her inspiring journey of recovery from PANS-PANDAS, a condition that caused her severe me...

5 Dec 202550min

PANS Flares, Medication and Recovery | Dr Kiki Chang

PANS Flares, Medication and Recovery | Dr Kiki Chang

It has been a while since the last PANS PANDAS Stories and our return is marked by an interesting chat with Dr Kiki Chang. He has a long PP pedigree and now works privately in the States where he has ...

17 Nov 202549min

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