Episode 20 - Stop the Censorship!

Episode 20 - Stop the Censorship!

A new commentary, "A full semantic toolbox is essential for autism research and practice to thrive," published in the journal Autism Research, the journal of the International Society for Autism Research, counters the call by several neurodiversity advocates to limit language and terms relating to autism. Two of its authors, Amy Lutz and Jill Escher, discuss the commentary and its context.


Read the commentary here: https://onlinelibrary.wiley.com/doi/full/10.1002/aur.2876

Abstract:

"Individuals diagnosed with autism spectrum disorder (ASD) present with a highly diverse set of challenges, disabilities, impairments and strengths. Recently, it has been suggested that researchers and practitioners avoid using certain words to describe the difficulties and impairments experienced by individuals with ASD to reduce stigma. The proposed limitations on terminology were developed by only a subset of the autism community, and the recommendations are already causing negative consequences that may be harmful to future scientific and clinical endeavors and, ultimately, to people with ASD. No one should have the power to censor language to exclude the observable realities of autism. Scientists and clinicians must be able to use any scientifically accurate terms necessary to describe the wide range of autistic people they study and support, without fear of censure or retribution."

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Episode #035 - The HCBS Settings Rule, Part 2 with Melissa Harris, CMS

Episode #035 - The HCBS Settings Rule, Part 2 with Melissa Harris, CMS

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Episode #034 - Medicaid Funding for Autism Services, Part 1 with Melissa Harris, CMS

Episode #034 - Medicaid Funding for Autism Services, Part 1 with Melissa Harris, CMS

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Episode #033 - Bridging the Divide

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Episode #031 - A Rare Gem: Paul Aronsohn, New Jersey's Ombudsman for I/DD

Episode #031 - A Rare Gem: Paul Aronsohn, New Jersey's Ombudsman for I/DD

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Episode #030 - The Film Beyond Takes Viewers into an Unimaginable World of Profound Autism

The brilliant new documentary film, "Beyond" features Tamara Mark, a Hollywood actress and dancer, and now single mom living in LA with her two grown sons who suffer from severe autism, Ian and Harry....

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