Episode #051 - The Reauthorization of the Autism CARES Act

Episode #051 - The Reauthorization of the Autism CARES Act

This episode features Alison Singer, president of Autism Science Foundation, and Craig Snyder of IKON Consulting, discussing why the Autism CARES Act should be reformed before it is re-authorized. This federal legislation sunsets on September 30, 2024 and efforts are underway to continue it with another budget authorization. But the CARES Act has glaring shortcomings: it has turned away from the most important questions in autism; it has sidelined the most severely affected part of the autism population; it serves the needs of entrenched interests rather than the urgent needs of the American people.

Please listen to Alison and Craig discuss:

• The history of the act, which started as The Combating Autism Act

• The problems with the IACC, the Interagency Coordinating Committee created by the Act

• The failure of the CARES Act to effect meaningful change, all while autism rates continue to climb and supports and services become more difficult to obtain

• How the CARES Act should explicitly require efforts to address profound autism; why the NIH needs an Office of Autism Research, not an IACC

What our community can do to help reform the CARES Act, and more

Link:NCSA Letter re CARES Act Reauthorization. Includes link to ASF white paper: https://www.ncsautism.org/blog//ncsa-submits-concerns-about-the-autism-cares-act-reauthorization-now-is-the-time-for-bold-action

Avsnitt(58)

Episode #050 - Girl Storm: A Stunning New Memoir of Profound Autism

Episode #050 - Girl Storm: A Stunning New Memoir of Profound Autism

We interview Peg Kerswell, the author of a bold new book chronicling her experiences raising a daughter with extremely severe autism. Ellie is nonverbal and self-injurious, she requires 24/7 care with...

20 Nov 202345min

Episode #049 - A Musical Mind: The Story of Adam Mandela Walden, a Cellist with Severe Autism

Episode #049 - A Musical Mind: The Story of Adam Mandela Walden, a Cellist with Severe Autism

We interview Rosanne Katon Walden, the mother of Adam Mandela Walden, a young man with autism with remarkable musical talent. At the age of 2 he taught himself harmonica, and to sign opera phoneticall...

13 Nov 202349min

Episode #048 - Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism

Episode #048 - Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism

Richard Edley, PhD is President/CEO of Rehabilitation and Community Providers Association (RCPA) of Pennsylvania, and a nationally recognized leader pushing for care options for adults with autism and...

30 Okt 202346min

Episode #047 - Open the Floodgates! Mary Ogle of A New Leaf in Oklahoma

Episode #047 - Open the Floodgates! Mary Ogle of A New Leaf in Oklahoma

This interview will blow your mind. You will have just one thought: "We need a thousand more Mary Ogles!" Mary is a force of nature and CEO of A New Leaf near Tulsa, Oklahoma, which serves 500 clients...

23 Okt 202349min

Episode #046 - The Benefits of Residential Communities and the Need for Choice: Molly Nocon, CEO of Noah Homes

Episode #046 - The Benefits of Residential Communities and the Need for Choice: Molly Nocon, CEO of Noah Homes

The next few episodes feature esteemed speakers from the recent Together for Choice conference held in Las Vegas Nevada. First up is Molly Nocon, CEO of Noah Homes in San Diego County, California. Noa...

15 Okt 202342min

Episode #045 - How to Be an Autism Advocate in Your State

Episode #045 - How to Be an Autism Advocate in Your State

State policy is hugely consequential for autism families — from state Medicaid programs, to support worker wages, to health care, to guardianship, to recreation and respite. This week we bring you the...

18 Sep 20231h 39min

Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay

Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay

We are delighted to bring back Dr. Alycia Halladay, Chief Science Officer of the Autism Science Foundation, who we first featured way back in Episode 4. Alycia and host Jill Escher debate some of the ...

11 Sep 20231h 9min

Episode #043 - Battling the Vaccine-Autism Myth, with Paul Offit, MD

Episode #043 - Battling the Vaccine-Autism Myth, with Paul Offit, MD

The vaccine-autism myth is rearing its head again, particularly via statements by Democratic presidential candidate Robert F Kennedy, Jr., so it's never been more important to set the record straight ...

7 Aug 202335min

Populärt inom Business & ekonomi

framgangspodden
varvet
badfluence
rss-jossan-nina
rss-borsens-finest
svd-tech-brief
uppgang-och-fall
avanzapodden
rss-svart-marknad
borsmorgon
fill-or-kill
bathina-en-podcast
rss-inga-dumma-fragor-om-pengar
rss-dagen-med-di
24fragor
tabberaset
lastbilspodden
rss-kort-lang-analyspodden-fran-di
rss-den-nya-ekonomin
kapitalet-en-podd-om-ekonomi