Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Featuring: Ashley Kim, Together for Choice

Jackie Ceonzo, SNACK* NYC

Note: For a video recording with slides, please see NCSAutism.org/webinars.

There is a nationwide shortage of long term supports and services available and it disproportionately affects adults with intellectual/developmental disabilities in need of 24/7 support. The need for such housing has been ignored and gone unanswered for decades by many responsible for the well-being of this population. While Congress expected that the ADA’s integration mandate would be interpreted in a manner that ensures that individuals who are eligible for institutional placement are able to exercise a right to community-based long-term services and supports, that expectation has not been fulfilled.

We believe that people with disabilities should have the right to choose where they live, work, and receive services that are appropriate for their needs and preferences without those responsible for making choice a reality blocking that path with red tape.

Links: Togetherforchoice.org SNACKNYC.com

Avsnitt(58)

Episode #050 - Girl Storm: A Stunning New Memoir of Profound Autism

Episode #050 - Girl Storm: A Stunning New Memoir of Profound Autism

We interview Peg Kerswell, the author of a bold new book chronicling her experiences raising a daughter with extremely severe autism. Ellie is nonverbal and self-injurious, she requires 24/7 care with...

20 Nov 202345min

Episode #049 - A Musical Mind: The Story of Adam Mandela Walden, a Cellist with Severe Autism

Episode #049 - A Musical Mind: The Story of Adam Mandela Walden, a Cellist with Severe Autism

We interview Rosanne Katon Walden, the mother of Adam Mandela Walden, a young man with autism with remarkable musical talent. At the age of 2 he taught himself harmonica, and to sign opera phoneticall...

13 Nov 202349min

Episode #048 - Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism

Episode #048 - Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism

Richard Edley, PhD is President/CEO of Rehabilitation and Community Providers Association (RCPA) of Pennsylvania, and a nationally recognized leader pushing for care options for adults with autism and...

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Episode #047 - Open the Floodgates! Mary Ogle of A New Leaf in Oklahoma

Episode #047 - Open the Floodgates! Mary Ogle of A New Leaf in Oklahoma

This interview will blow your mind. You will have just one thought: "We need a thousand more Mary Ogles!" Mary is a force of nature and CEO of A New Leaf near Tulsa, Oklahoma, which serves 500 clients...

23 Okt 202349min

Episode #046 - The Benefits of Residential Communities and the Need for Choice: Molly Nocon, CEO of Noah Homes

Episode #046 - The Benefits of Residential Communities and the Need for Choice: Molly Nocon, CEO of Noah Homes

The next few episodes feature esteemed speakers from the recent Together for Choice conference held in Las Vegas Nevada. First up is Molly Nocon, CEO of Noah Homes in San Diego County, California. Noa...

15 Okt 202342min

Episode #045 - How to Be an Autism Advocate in Your State

Episode #045 - How to Be an Autism Advocate in Your State

State policy is hugely consequential for autism families — from state Medicaid programs, to support worker wages, to health care, to guardianship, to recreation and respite. This week we bring you the...

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Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay

Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay

We are delighted to bring back Dr. Alycia Halladay, Chief Science Officer of the Autism Science Foundation, who we first featured way back in Episode 4. Alycia and host Jill Escher debate some of the ...

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Episode #043 - Battling the Vaccine-Autism Myth, with Paul Offit, MD

Episode #043 - Battling the Vaccine-Autism Myth, with Paul Offit, MD

The vaccine-autism myth is rearing its head again, particularly via statements by Democratic presidential candidate Robert F Kennedy, Jr., so it's never been more important to set the record straight ...

7 Aug 202335min

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