Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

National Council on Severe Autism Webinar, May 15, 2024 We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photographer, podcaster, the director of social media for Autism Speaks, and the mother of three children, one of whom, 11 year-old Charlie, has an extreme form of autism and another, Jude, who is higher functioning. She also serves on the board of NCSA.

In this webinar and conversation Eileen shares the realities of Jude's profound autism, including persistent pica (ingestion of inedible objects), spitting, property destruction and aggression, her experiences being bullied online by neurodiversity adherents, her own autism diagnosis, and how she finds the time to share her story with the world while dealing with her son's life-threatening behaviors. Moderated by Jill Escher, NCSA. Links: The Autism Cafe: https://theautismcafe.com Adulting on the Spectrum podcast: https://www.autismspeaks.org/podcast/adulting-spectrum-meet-our-hosts Find us at NCSAutism.org

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Episode #050 - Girl Storm: A Stunning New Memoir of Profound Autism

Episode #050 - Girl Storm: A Stunning New Memoir of Profound Autism

We interview Peg Kerswell, the author of a bold new book chronicling her experiences raising a daughter with extremely severe autism. Ellie is nonverbal and self-injurious, she requires 24/7 care with...

20 Nov 202345min

Episode #049 - A Musical Mind: The Story of Adam Mandela Walden, a Cellist with Severe Autism

Episode #049 - A Musical Mind: The Story of Adam Mandela Walden, a Cellist with Severe Autism

We interview Rosanne Katon Walden, the mother of Adam Mandela Walden, a young man with autism with remarkable musical talent. At the age of 2 he taught himself harmonica, and to sign opera phoneticall...

13 Nov 202349min

Episode #048 - Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism

Episode #048 - Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism

Richard Edley, PhD is President/CEO of Rehabilitation and Community Providers Association (RCPA) of Pennsylvania, and a nationally recognized leader pushing for care options for adults with autism and...

30 Okt 202346min

Episode #047 - Open the Floodgates! Mary Ogle of A New Leaf in Oklahoma

Episode #047 - Open the Floodgates! Mary Ogle of A New Leaf in Oklahoma

This interview will blow your mind. You will have just one thought: "We need a thousand more Mary Ogles!" Mary is a force of nature and CEO of A New Leaf near Tulsa, Oklahoma, which serves 500 clients...

23 Okt 202349min

Episode #046 - The Benefits of Residential Communities and the Need for Choice: Molly Nocon, CEO of Noah Homes

Episode #046 - The Benefits of Residential Communities and the Need for Choice: Molly Nocon, CEO of Noah Homes

The next few episodes feature esteemed speakers from the recent Together for Choice conference held in Las Vegas Nevada. First up is Molly Nocon, CEO of Noah Homes in San Diego County, California. Noa...

15 Okt 202342min

Episode #045 - How to Be an Autism Advocate in Your State

Episode #045 - How to Be an Autism Advocate in Your State

State policy is hugely consequential for autism families — from state Medicaid programs, to support worker wages, to health care, to guardianship, to recreation and respite. This week we bring you the...

18 Sep 20231h 39min

Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay

Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay

We are delighted to bring back Dr. Alycia Halladay, Chief Science Officer of the Autism Science Foundation, who we first featured way back in Episode 4. Alycia and host Jill Escher debate some of the ...

11 Sep 20231h 9min

Episode #043 - Battling the Vaccine-Autism Myth, with Paul Offit, MD

Episode #043 - Battling the Vaccine-Autism Myth, with Paul Offit, MD

The vaccine-autism myth is rearing its head again, particularly via statements by Democratic presidential candidate Robert F Kennedy, Jr., so it's never been more important to set the record straight ...

7 Aug 202335min

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