Episode 21: Cameron Nix
Cameron Nix joined the podcast for Episode 21 and talked about navigating the first year of his daughter's diagnosis.
20 Okt 202324min
Episode 20: Maddie's Eulogy
Madelynn Joan passed away on August 30, 2023. Many of you reached out to us to convey that you would like to be there but could not make the prayer service or funeral. This was Adam's eulogy that he r...
15 Sep 202312min
Episode 19: Your Story Matters
Having an Angelman Syndrome diagnosis can be a lonely process. I've found that sharing Maddie's story has opened the hearts and minds of many people outside of our family.
9 Juni 202318min
Episode 18: Maddie's IEP
Maddie went through her first IEP meeting. Since Maddie has Angelman Syndrome, these Individualized Education Plans will be updated year after year. Hear how our first one went.
19 Maj 202314min
Episode 18 Preview: IEPs
A quick preview of episode 18 will be all about Maddie's first IEP meeting. I'll go over how it went, how I prepared, and what I wish I would have done differently.
12 Maj 202342s
Episode 17: Provider Turnover
Having a child with multiple specialists is hard. It's even harder when you have to adapt to a new provider who doesn't know all of the ins and outs of Angelman Syndrome or your child.
5 Maj 202315min
Episode 16: Public Success, Private Failure
In episode 16 of Maddie's Joy: An Angelman Journey, I discuss how a new phrase caused me to look inward. Being a parent to an Angelman Syndrome child can be hard. I discuss some of my shortcomings as ...
28 Apr 202319min
Episode 15: Aaron Ferguson's Sibling Story
Aaron Ferguson was kind enough to share his experience as a sibling of an Angelman individual. We discuss how he maintains a strong relationship with his brother as well as some of his experiences alo...
21 Apr 202325min
