The Crossing for CF:  On Location (West Palm Beach, Fla.)

The Crossing for CF: On Location (West Palm Beach, Fla.)

The CF community is a small one. It’s made up of 40,000 people with the disease in the U.S. When you add two parents to the mix that’s 80,000 parents, then there are grandparents, siblings, Aunt and Uncles, friends and you get the picture. We have a small, tight knit community.

Laura Bonnell thought it was important that the Bonnell Foundation reach out to volunteer for the Pipers Angels Crossing for CF event. It was the weekend of June 23rd, 2023. It’s so important that we support one another.

This podcast playfully shows the camaraderie and strength of our wonderful CF community.

Travis Suit, the Founder of Piper’s Angels is a sweet soul and the father of Piper who has CF. Recently Travis discovered he has CF (and his two sisters do as well). In 2017 Travis started the paddle event. Paddlers start in Bimini, Bahamas, and land on the Beach in West Palm Beach. It was an incredible evet to witness.

Hats off to everyone who participated. I have so many new friends and it was great to see people in person, finally.

Thanks to Beth Vanstone (producer) who met me in West Palm Beach from the Toronto area. I could not have done it without you. We really are very funny in this wonderful podcast (and in general).

Thanks to editor Jon Gay for putting this podcast together as I recorded it in short segments on my iPhone.

The Bonnell Foundation website: https://thebonnellfoundation.org

Bonnell Foundation email: thebonnellfoundation@gmail.com

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Genentech: https://www.gene.com

Viatris: https://www.viatris.com/en

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(208)

The Anomaly: living off donated organs and dark humor by Inka Nisinbaum

The Anomaly: living off donated organs and dark humor by Inka Nisinbaum

What would you do if you didn't know what your future held? For people living with cystic fibrosis, uncertainty is often a constant companion. Inka Nisinbaum faced one of the biggest unknowns of her l...

27 Juli 47min

Ireland's Rising Golf Star, David Howard, who happens to have CF

Ireland's Rising Golf Star, David Howard, who happens to have CF

Luck of the Irish.   Irish international amateur golfer David Howard  doesn't seem to need luck with all the talent he has. We had an inspiring conversation about chasing big dreams while living with ...

20 Juli 44min

CF Scholars: Stories of Determination

CF Scholars: Stories of Determination

Dreams and Determination: Meet four Inspiring students, Living with cystic fibrosis. One of the greatest joys of The Bonnell Foundation is helping young adults living with cystic fibrosis pursue their...

13 Juli 53min

Turning family loss into hope: Kate O'Donnell's story

Turning family loss into hope: Kate O'Donnell's story

I thoroughly enjoy doing my podcasts. It’s the one thing I truly miss from my television news reporting days — interviewing extraordinary people every single day. Through The Bonnell Foundation, I now...

6 Juli 44min

Jon Gay on Radio, Podcasting, and the Art of Storytelling

Jon Gay on Radio, Podcasting, and the Art of Storytelling

Jon Gay and I had a great time recording this podcast because we not only talked about podcasting, but also reflected on our years in the broadcast business and what people should know before starting...

29 Juni 48min

Running changed and saved her life - Katie O'Grady inspires

Running changed and saved her life - Katie O'Grady inspires

"Many people have their own thing that lights them on fire, for me, it's running" say Katie O'Grady.  CF modulator drugs changes are a game changer for people living with cystic fibrosis. Katie O’Grad...

22 Juni 38min

Final Breath, First New Life: Jillian’s Transplant Journey

Final Breath, First New Life: Jillian’s Transplant Journey

“Take in your final breath before your first new one.”  Those were the words Jillian heard before her double lung transplant—words that would mark the end of one life chapter and the beginning of anot...

15 Juni 26min

Rare, But Not Invisible: Chrisy and Dr. Kingzett talk advocacy.

Rare, But Not Invisible: Chrisy and Dr. Kingzett talk advocacy.

Chrisy and Dr. Kingzett, two women I met when we were all trying to raise our rare voices a little louder. Christine “Chrisy” Klavitter and Dr. Kristen Kingzett are both rare disease advocates, but mo...

8 Juni 58min

Populärt inom Utbildning

historiepodden-se
rss-bara-en-till-om-missbruk-medberoende-2
det-skaver
nu-blir-det-historia
harrisons-dramatiska-historia
not-fanny-anymore
johannes-hansen-podcast
allt-du-velat-veta
rss-viktmedicinpodden
roda-vita-rosen
sa-in-i-sjalen
rikatillsammans-om-privatekonomi-rikedom-i-livet
rss-max-tant-med-max-villman
rss-autismandan
i-vantan-pa-katastrofen
rss-basta-livet
psykologsnack
sektledare
rss-traningsklubben
vi-gar-till-historien