Zolgensma Approved to Treat Young SMA Patients in Canada
SMA News Today’s multimedia associate, Price Wooldridge, discusses a Spinraza Phase 4 trial to treat children who failed to respond to gene therapy. DeAnn Runge shares her experience obtaining her first dose of the Pfizer COVID vaccine. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
22 Jan 20217min
Keeping Your Child with SMA in School During the Cold and Flu Season & Soaring With Hope
SMA News Today’s multimedia associate, Price Wooldridge, discusses strategies to keep your child with Spinal Muscular Atrophy (SMA) in school during the cold and flu season. Forums Director Kevin Schaefer reads the introductory column from our newest writer, Ari Anderson. To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.
20 Jan 20218min
New Cure SMA Webinar Series to Focus on Health, Wellness & Let's Talk About Sex and SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses the Cure SMA three-part webinar series on wellness topics for the Spinal Muscular Atrophy community. Typically a taboo topic, sex and SMA isn’t discussed often. Forum members and columnists have stepped up to the plate to open the discussion on dating and relationships, helping break the stigma that those with disabilities aren’t sexual beings. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
18 Jan 20215min
Higher-dose Spinraza Trial Now Enrolling Part B After No Safety Issues Found
SMA News Today’s multimedia associate, Price Wooldridge, discusses a higher dose Spinraza trial now enrolling Part B after no safety issues were found. Also, DeAnn Runge shares her personal experience after switching from Spinraza to Evrysdi. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
15 Jan 20217min
This Year, I Want to Be Brave & The Challenges That Come With Pursuing Independence
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Brianna Albers, The Wolf Finally Frees Itself, “This Year, I Want to Be Brave”. Forums Director Kevin Schaefer talks about the challenges that come with pursuing independence and his goals for the future. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
13 Jan 20218min
Informal SMA Caregivers Surveyed in Europe Report High Daily Burden & Relevant Topics On The Forums
SMA News Today’s multimedia associate, Price Wooldridge, discusses how non-professional caregivers who care for children with Spinal Muscular Atrophy (SMA) carry a high daily burden that negatively affects their lives. As the moderators return from holiday break the most relevant topics are being discussed on the forums. Recovering from spinal fusion surgery, going to a chiropractor, setting goals for the New Year, dating as well as life hacks are all among what is being talked about. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
11 Jan 202110min
Zolgensma Linked in 3 Cases to Serious But Treatable Blood Disorder
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma is linked in three cases to a serious but treatable blood disorder. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
8 Jan 20219min
Zolgensma Approved to Treat Young SMA Patients in Canada & Kidney Stone And a Trip To The ER
SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgensma approval in Canada for the treatment of young Spinal Muscular Atrophy patients. Also, Forums Director Kevin Schaefer tells the story of a kidney stone and a trip to the ER during the holidays. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
6 Jan 20218min
