#73: Interview With Tyler Dykema, Artist and Musician with SMA
In episode 73, host Kevin Schaefer talks with Tyler Dykema from Grand Rapids, Michigan. Tyler is an artist, musician, and punk rock connoisseur who has SMA Type II. He talks in this episode about growing up with SMA, his artistic passions, concert accessibility, and more. Happy New Year! ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit www.smanewstoday.com
5 Jan 202138min
Paramedian Injection Approach Found to Ease Spinraza Administration & Difficult On Getting Evrysdi
SMA News Today’s multimedia associate, Price Wooldridge, discusses administering Spinraza (nusinersen) via a paramedian injection to shorten procedure times and reduce adverse events. SMA News Today’s forums moderator, DeAnn Runge, discusses one of the most difficult aspects of living with a disability, which is navigating the healthcare system. Brianna Albers latest column, I Can’t Get Evrysdi Yet, Thanks to a Broken Healthcare System, goes into detail on some of the struggles faced while maneuvering this faulty system. ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit www.smanewstoday.com
4 Jan 202110min
Ella Has Fun While Sheltering at Home & Stepping Into a New Me in the Year Ahead
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Michael Casten, “Five Servings of Strength”, Ella Has Fun While Sheltering at Home. SMA News Today’s forums moderator, DeAnn Runge, reads Alyssa Silva’s recent column, Stepping Into a New Me in the Year Ahead, where she does just that. ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit www.smanewstoday.com
1 Jan 20217min
Being An Uncle With SMA and How This Role Can Change One's Life
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Michael Casten, “Five Servings of Strength”, Ella Has Made Big Gains Since Diagnosis Day. SMA News Today’s Columnist and Forums Director, Kevin Schaefer, Kevin Schaefer reflects on being an uncle with SMA and how this role has changed his life. ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit www.smanewstoday.com
30 Dec 20208min
Smart Tech Is Integral to My Quality of Life & 2020 Highlights
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Brianna Albers, “The Wolf Finally Frees Itself”, Yes, Actually, Smart Tech Is Integral to My Quality of Life. SMA News Today’s forums moderator, DeAnn Runge, looks back at 2020, and shares some memorable highlights despite a pandemic throwing a wrench into everything. She encourages everyone to go after their goals and dreams in 2021. ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit www.smanewstoday.com
28 Dec 20208min
Rising From the Ashes and Flying With Broken Wings & Finding My Voice In the Disability Community
SMA News Today’s multimedia associate, Price Wooldridge, reads a column by Hasley Blocher, “From Where I Sit”, Rising From the Ashes an Flying With Broken Wings. SMA News Today’s forums moderator, DeAnn Runge shares excerpts from Katie Napiwocki's recent column, Finding My Voice within the Disability Community, where she explores the concept of disability and how it relates to her life. ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit www.smanewstoday.com
25 Dec 20207min
Financial Burden of SMA Much Higher Than Other Conditions & The Mental Benefits of Physical Therapy
SMA News Today’s multimedia associate, Price Wooldridge, discusses the higher financial burden on Spinal Muscular Atrophy (SMA) patients, compared to other conditions. SMA News Today’s Columnist and Forums Director, Kevin Schaefer, reads from an article on our HCP site about the mental and emotional benefits of physical therapy. ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit www.smanewstoday.com
23 Dec 202012min
Measuring Neurological Impact of Polio Proves Useful in SMA, Study Reports
SMA News Today’s multimedia associate, Price Wooldridge, discusses how measuring the neurological impact of Polio proves useful in studying patients with Spinal Muscular Atrophy (SMA). SMA News Today’s forums moderator, DeAnn Runge, talks about an article that discusses the Paramedian approach for Spinraza injections. The option of Everysdi is also a hot topic. Since gatherings are out this holiday, one post suggests group streaming holiday movies. It may be unconventional, but is a way to bring togetherness during the holidays. ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit www.smanewstoday.com
21 Dec 202010min
