S1E3 Navigating the World with Narcolepsy: Liz's Travel Tales

S1E3 Navigating the World with Narcolepsy: Liz's Travel Tales

Leave a review! In this engaging episode, host Kerly Bwoga chats with Liz, who shares her experiences of traveling with narcolepsy. Diagnosed at 18, Liz offers a candid look into the highs and lows of her travel adventures, providing valuable insights for anyone facing similar challenges. Chapters: Welcoming Liz and Introduction [0:00]Liz's Narcolepsy Diagnosis and Background [2:15]The Realities of Traveling with Narcolepsy [5:30]Joyful Experiences ...

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S5E7: Sleep health tech consultant and  paediatric sleep consultant for a leading London NHS trust.

S5E7: Sleep health tech consultant and paediatric sleep consultant for a leading London NHS trust.

Leave a review! Dr. Desaline Joseph is a sleep physician, circadian scientist, and health tech consultant. Within the NHS, she helps look after the largest pediatric neurology sleep lab in the UK , ...

4 Nov 50min

S5E6: Pray It Away? Growing Up With Narcolepsy and Being Misunderstood

S5E6: Pray It Away? Growing Up With Narcolepsy and Being Misunderstood

Leave a review! Milah was six when narcolepsy began. She remembers a very energetic, curious child, and then a child who slept so much she spent school days in the medical room. In this episode, host...

29 Okt 52min

S5E5:We Think Outside the Box": Narcolepsy, ADHD, and Being Underestimated

S5E5:We Think Outside the Box": Narcolepsy, ADHD, and Being Underestimated

Leave a review! Kylie Dennis O'Sullivan was diagnosed with narcolepsy type 1 at 12 years old — after years of being told by doctors that she was "just fat and lazy." In this Black History Month UK spe...

6 Okt 54min

S5E4: Why We Just Want to Be Trusted: Narcolepsy, Careers, and Burnout

S5E4: Why We Just Want to Be Trusted: Narcolepsy, Careers, and Burnout

Leave a review! Liz is a speech and language therapist. Christine is a former chartered accountant. Both were diagnosed with narcolepsy type 1 — and both have had to fight, again and again, for accomm...

29 Sep 57min

S5E3: She Falls Asleep, She Can't Stop Ticcing — Meet Two Best Friends

S5E3: She Falls Asleep, She Can't Stop Ticcing — Meet Two Best Friends

Leave a review! Mel has narcolepsy without cataplexy.Jeanna has Tourette syndrome. They met in a Walmart parking lot, went viral for a motorcycle ride the internet still argues about, and somehow bec...

22 Sep 1h 17min

S5E2: How a 16-Year-Old Learned to Stop Masking Narcolepsy

S5E2: How a 16-Year-Old Learned to Stop Masking Narcolepsy

Leave a review! At just 16, Chloe has already lived through what most people spend decades trying to understand about themselves. Diagnosed with narcolepsy type 1 in seventh grade after a mysterious t...

3 Sep 42min

Who Decides What a Medical Breakthrough Is Actually Worth?

Who Decides What a Medical Breakthrough Is Actually Worth?

Leave a review! What is the exact dollar value of staying awake? In this special episode, we dig into a real independent evidence report on Orzeyful (oporexin), a newly FDA-approved drug for narcoleps...

15 Aug 23min

Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit

Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit

Leave a review! It took Michelle Chadwick 20 years to get diagnosed with idiopathic hypersomnia (IH) and when she finally did, she found almost nothing online to help her make sense of it. So she bui...

10 Aug 50min

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