Our Fight to Breathe: A Cystic Fibrosis Podcast23 Juni 2025

Coping with Grief and Keeping the Legacy Alive

In this deeply moving episode, host Caleigh Haber sits down with Diane Shader Smith, a powerful advocate in the cystic fibrosis community and author whose daughter Mallory lived with CF until age 25. Diane has channeled her grief into meaningful advocacy work, sharing Mallory's story through the acclaimed books "Salt in My Soul" and "The Diary of a Dying Girl," as well as a documentary that has reached audiences worldwide.

This conversation explores the complex journey of grief after losing a loved one to chronic illness, offering honest insights into how families navigate loss while keeping legacies alive. Diane shares how she's found purpose through advocacy work, particularly in raising awareness about antimicrobial resistance and phage therapy research, while maintaining space for both grief and joy in daily life.

Key Topics Covered:

Navigating the early stages of grief and trauma after losing a child to CF
Finding meaning and purpose through advocacy and storytelling
Balancing grief with joy and living forward while honoring the past
The power of community connection during loss and healing
Practical ways to honor loved ones and keep their legacies alive
Understanding phage therapy and its potential for CF treatment

Whether you're living with chronic illness, supporting someone who is, or working in healthcare, this episode offers profound insights into resilience, community, and the healing power of sharing our stories. Diane's journey reminds us that even in our deepest grief, we can find ways to create meaning and help others.

Medical disclaimer: This podcast is for educational purposes only and should not replace professional medical advice.

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