Bria from Wales, a professional patient rights advocate
The POTScast9 Aug 2025

Bria from Wales, a professional patient rights advocate

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance.

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Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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Avsnitt(250)

E154: POTS Diaries with Thomas, a high level jiu jitsu athlete who developed POTS at 20

E154: POTS Diaries with Thomas, a high level jiu jitsu athlete who developed POTS at 20

Thomas loves jiu jitsu, skateboarding, and surfing. He developed POTS in college, and really struggled with stamina. Slowly, he has worked both physically and mentally to get himself back in the game....

1 Aug 202337min

E153: POTS Diary with Michael who has long COVID after acute infection in 2020

E153: POTS Diary with Michael who has long COVID after acute infection in 2020

Michael developed Long COVID at the beginning of the pandemic in 2020. He is fortunate to be back to 75% capacity, but recognizes the changes in his lifestyle and broader life as a result of his chron...

25 Juli 202340min

E152: POTS Diary with Autumnizhurr, a content creator and gamer from California

E152: POTS Diary with Autumnizhurr, a content creator and gamer from California

Autumnizhurr has been disabled since college, due to POTS and Wolff Parkinson White Syndrome. She has had several heart ablations to minimize her symptoms, although they caused other problems. She is ...

18 Juli 202338min

E151: POTS Diary with Rebecca from New Zealand, a young nurse who had to move home to deal with symptoms

E151: POTS Diary with Rebecca from New Zealand, a young nurse who had to move home to deal with symptoms

Rebecca was living the dream when POTS hit - just out of college, living in a flat with friends, working as a nurse in the hospital - and forced her to move back home. Slowly, she improved after being...

11 Juli 202319min

E150: Diary with POTSie Lyla and POTSmom Joli

E150: Diary with POTSie Lyla and POTSmom Joli

This episode features a mother and daughter describing how POTS has impacted their daily life. Lyla has had medical issues for most of her life, but a bug bite seemed to really have exacerbated her sy...

4 Juli 202331min

E146: Research on Long COVID and POTS with Marie Claire Seeley

E146: Research on Long COVID and POTS with Marie Claire Seeley

The pandemic has provided a unique opportunity to study new onset POTS cases with a known trigger - COVID. The symptom similarities are striking between those with POTS and Long COVID in this Australi...

3 Juli 202347min

E149: Tried all the recommendations? What to do next?

E149: Tried all the recommendations? What to do next?

Jill and Dr. Cathy Pederson discuss what to do after you have exhausted practitioner recommendations. There are lots of ideas provided, as well as tips on how to evaluate each potential new treatment....

27 Juni 202351min

E148: POTS Diary with Nicole from Texas, news reporter who got a POTS story on the Today Show

E148: POTS Diary with Nicole from Texas, news reporter who got a POTS story on the Today Show

Nicole's career as a news reporter in Anchorage, AK and Raleigh, NC was cut short when she developed POTS. While her symptoms have improved since that time, she is still not able to be upright enough ...

24 Juni 202332min

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