The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Avsnitt(250)

Madeline on creating the POTSie app to help manage POTS

Madeline on creating the POTSie app to help manage POTS

In this episode, Madeline shares her experience of living with POTS, from diagnosis to the daily routines that helped her improve over time. She talks about how exhausting it can be to live with a con...

4 Okt 27min

Robert Groysman, MD on identifying mechanisms driving long COVID with the Trigger-Timing Framework

Robert Groysman, MD on identifying mechanisms driving long COVID with the Trigger-Timing Framework

After successfully treating his own Long COVID, founding the COVID Institute, treating hundreds of patients, and publishing the seven-volume Complete Long COVID Handbook series, Dr. Robert Groysman ha...

29 Sep 53min

Dr. David Kaufman & Paddy Monahan on Vindara Health for Complex Patients

Dr. David Kaufman & Paddy Monahan on Vindara Health for Complex Patients

Vindara Health is the new telehealth specialty clinic created by Dr. David Kaufman and Paddy Monahan, to improve access to expert care for patients with the most complex conditions, including POTS, lo...

20 Sep 50min

Campaign against synthetic fragrances with Attorney Scott Cole and Dr. Tania Dempsey

Campaign against synthetic fragrances with Attorney Scott Cole and Dr. Tania Dempsey

In this episode, we explore the legal and civil rights issues surrounding chemical and fragrance intolerance, including what happens when people are unable to safely access hotels, businesses, and oth...

13 Sep 53min

Michelle co-founded CANrise19 to help Canada’s COVID vaccine injured

Michelle co-founded CANrise19 to help Canada’s COVID vaccine injured

Michelle was a busy mom, business owner and back country adventurer whose life changed dramatically in the 36 hours following her second COVID shot.  After finding little help locally in Canada, she t...

7 Sep 36min

Four Insights for Providers with Dr. Kirti Sivakoti, MD

Four Insights for Providers with Dr. Kirti Sivakoti, MD

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director...

30 Aug 48min

When “Inactive” Ingredients Aren’t: The ICU stay that inspired ExciIQ, with Nicole & Jeff Allen and Mike Brook

When “Inactive” Ingredients Aren’t: The ICU stay that inspired ExciIQ, with Nicole & Jeff Allen and Mike Brook

For patients with medication hypersensitivities, figuring out exactly what is in a medication can be surprisingly difficult. In episode 247 of The POTScast, data scientist Mike Brook discussed researc...

23 Aug 44min

Lyme disease and MCAS Q&A with Dr. Tania Dempsey as part of Mast Cell Matters series

Lyme disease and MCAS Q&A with Dr. Tania Dempsey as part of Mast Cell Matters series

In this episode Dr. Dempsey answers listener questions about Lyme disease, sharing why it can be complex, her treatment approach at different stages, how she starts treatment on highly reactive MCAS p...

15 Aug 33min

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