The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS

Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS

Vascular surgeons Dr. Robert Hacker and Dr. Deena Chihade share their unusual path to POTS via looking at the venous system, and explain what they are seeing in patients before and after addressing ve...

4 Jan 52min

Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS

Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS

Heather is a Nurse Practioner with long experience in vascular medicine, a dysautonomia patient herself, and is now working with a vascular clinic in Toledo, OH to bring genetic testing and counseling...

30 Dec 202542min

Sarah from FL on life after COVID/POTS/MCAS

Sarah from FL on life after COVID/POTS/MCAS

Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new gam...

21 Dec 202543min

Dr. Dempsey on leading edge treatments she is finding helpful

Dr. Dempsey on leading edge treatments she is finding helpful

One of the most common questions we get from listeners is about the novel treatments that Dr. Dempsey mentions, such as therapeutic plasmapheresis exchange (or apheresis), SOT, ozone therapy, UV light...

15 Dec 20251h 4min

New (free) AI intelligence platform for patients with Dr. Jen Curtin

New (free) AI intelligence platform for patients with Dr. Jen Curtin

Dr. Jennifer Curtin is Medical Director of the RTHM clinic and former complex chronic illness patient herself, after having ME/CFS while in medical school.  Now her team has created the RTHM intellige...

9 Dec 202551min

Jace on health policy, why “being a burden is a blessing”, and much more

Jace on health policy, why “being a burden is a blessing”, and much more

Jace had hEDS and POTS for years before it was diagnosed and then had to wait MORE years to start getting any treatment, but in the meantime graduated college, got an advanced degree, worked on state ...

2 Dec 202547min

Progress for the COVID vaccine injured with REACT19 Co-Chairman Brianne Dressen

Progress for the COVID vaccine injured with REACT19 Co-Chairman Brianne Dressen

Brianne Dressen co-founded REACT19 to help support people with life-altering COVID-19 vaccine injuries after being injured herself in one of the original clinical trials, and then learning the hard wa...

25 Nov 202543min

Dr. Eboni Cornish on root causes of brain inflammation with Dr. Dempsey on Mast Cell Matters

Dr. Eboni Cornish on root causes of brain inflammation with Dr. Dempsey on Mast Cell Matters

This is a not-to-be-missed conversation for anyone interested in brain inflammation.  Dr. Eboni Cornish, M.D. is Associate Medical Director at Amen Clinics, Fellow and Treasurer of the Board for the I...

17 Nov 202548min

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