#152: Kamil Goungor, Disability activist

#152: Kamil Goungor, Disability activist

In episode 152, host Kevin Schaefer talks with Kamil Goungor from Athens, Greece. Kamil, who has SMA type II, works for the European Network on Independent Living and is the co-founder and chair of the Greek independent living organization, i-living. In this episode, Kamil shares his experiences growing up with SMA, pursuing education and career opportunities, and advocating for the disabled community. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

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#15 - Byron And Moriah Potter

#15 - Byron And Moriah Potter

In the 15th episode of the SMA News Today podcast, Community Editor Kevin Schaefer interviews Byron and Moriah Potter -- parents of two children who have SMA.

17 Sep 201839min

#14 - Interview With Amber Bosselman

#14 - Interview With Amber Bosselman

In SMA News Today's 14th podcast, Community Editor Kevin Schaefer interviews college student Amber Bosselman, who talks about her diagnosis as a child, life growing up with the disease, and her presen...

22 Aug 201836min

#13 - Interview With Ann Heathcote

#13 - Interview With Ann Heathcote

SMA News Today Community Editor Kevin Schaefer interviews Ann Heathcote -- a college student with SMA type 2.

31 Juli 201834min

#12 - Interview With Kristin Walters

#12 - Interview With Kristin Walters

24 year-old Kristin Walters talks to SMA News Today Community Editor Kevin Schaefer about overcoming depression, travel to Europe with SMA, and her experiences with Spinraza.

5 Juli 201846min

#11 - Interview With Filmmaker Owen Kent

#11 - Interview With Filmmaker Owen Kent

SMA News Today Community Editor Kevin Schaefer interviews Owen Kent, a filmmaker who has SMA. Kevin and Owen met at the 2018 CureSMA Conference in Dallas about his SMA diagnosis and experience with th...

2 Juli 201836min

#10 - Friederike And Anna Wittchen From #CureSMA 2018

#10 - Friederike And Anna Wittchen From #CureSMA 2018

#10 - Friederike And Anna Wittchen From #CureSMA 2018 by SMA News Today

21 Juni 201838min

#9 - Interview With Israel & Rio Landa

#9 - Interview With Israel & Rio Landa

SMA News Today Community Editor Kevin Schaefer interviews Israel and Rio Landa, both medical professionals whose son Mateo has type 2 SMA. Israel and Rio talk about their diagnosis experience, feedbac...

4 Juni 201822min

#8 - Interview With Wheelchair Rapunzel Founder Alex Dacy

#8 - Interview With Wheelchair Rapunzel Founder Alex Dacy

In SMA News Today's 8th podcast, Community Editor Kevin Schaefer interviews Wheelchair Rapunzel Founder Alex Dacy. Visit the site here: https://www.wheelchairrapunzel.com

26 Apr 201830min

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