#152: Kamil Goungor, Disability activist
SMA News & Perspectives28 Aug 2025

#152: Kamil Goungor, Disability activist

In episode 152, host Kevin Schaefer talks with Kamil Goungor from Athens, Greece. Kamil, who has SMA type II, works for the European Network on Independent Living and is the co-founder and chair of the Greek independent living organization, i-living. In this episode, Kamil shares his experiences growing up with SMA, pursuing education and career opportunities, and advocating for the disabled community. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

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#2 - Interview With Author Ben Mattlin

#2 - Interview With Author Ben Mattlin

SMA News Today Community Editor Kevin Schaefer interviews author Ben Mattlin. His new book, "In Sickness and in Health: Love, Disability, and a Quest to Understand the Perils and Pleasures of Inter-ab...

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SMA News & Perspectives, October 24: Amino Acid Diet - JACO Robotic Arm

SMA News & Perspectives, October 24: Amino Acid Diet - JACO Robotic Arm

Today's flash briefing talks about the amino acid diet in SMA management, and KINOVA's JACO robotic arm for SMA patients.

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#1 - Interview With Christine Getman of Magic Wheelchair

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In SMA News Today's first podcast, Community Editor Kevin Shaefer interviews Christine Getman Director of the organization Magic Wheelchair. She talks about her work at Magic Wheelchair, experiences w...

19 Okt 201718min

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