S3E11 Navigating Narcolepsy in Namibia Josephine's Journey

S3E11 Navigating Narcolepsy in Namibia Josephine's Journey

Leave a review! In this episode of Narcolepsy Navigators, hosts Kerly Bwoga and Liz are joined by Josephine Niipinge from Namibia, who shares her experience of living with narcolepsy with cataplexy. Diagnosed at the young age of 13, Josephine discusses the challenges she faced due to perceptions of witchcraft and lack of awareness about her condition in her community. She talks about her struggle to get appropriate medical treatment and how it impacted her education and social life. Josephine...

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Avsnitt(62)

Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit

Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit

Leave a review! It took Michelle Chadwick 20 years to get diagnosed with idiopathic hypersomnia (IH) and when she finally did, she found almost nothing online to help her make sense of it. So she bui...

10 Aug 50min

YouTube Hates Us and That's Exactly the Point

YouTube Hates Us and That's Exactly the Point

Leave a review! What happens when you crack open the backend analytics of a podcast built for one of the rarest, most invisible patient communities on earth? In this special episode, we dig into the d...

23 Juli 18min

S5E1: The Night I Carried My Sleeping Son to the ER

S5E1: The Night I Carried My Sleeping Son to the ER

Leave a review! What happens when your teenage son stops closing doors, watches the same movie three times in one day without remembering, and disappears from his own life for weeks at a time? In this...

23 Juli 1h 17min

S4E12: The Teacher Who Was Sent to Rehab for Being Sick

S4E12: The Teacher Who Was Sent to Rehab for Being Sick

Leave a review! Imagine falling asleep for two months straight — losing your memory, your personality, even your sense of time. That's life with Kleine-Levin Syndrome (KLS), one of the rarest sleep di...

14 Juli 52min

S1E5 - Advocacy Series: 27 Years of Narcolepsy: From Rock Bottom to Elite Trainer

S1E5 - Advocacy Series: 27 Years of Narcolepsy: From Rock Bottom to Elite Trainer

Leave a review! What does it look like to build an extraordinary life with narcolepsy — without medication? Welcome to the Narcolepsy Navigators Advocacy Series, where lived experience meets powerfu...

30 Juni 55min

S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser

S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser

Leave a review! Narcolepsy Navigators launches its Medical Series focused on the medical side of narcolepsy and common comorbidities. Host Fred (currently undiagnosed sleep disorder) and co-host Berna...

9 Juni 52min

S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy

S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy

Leave a review! ⚠️ Content note: This episode includes discussion of childhood sexual abuse, suicidal ideation, and mental health crisis. Please take care of yourself first. 🎙️ EPISODE GUEST: Alejand...

14 Maj 1h 2min

Advocacy Series S1E4: The App Built From a Father's Love: Nabu AI's Origin Story

Advocacy Series S1E4: The App Built From a Father's Love: Nabu AI's Origin Story

Leave a review! Episode Summary: What happens when a brand strategist — someone who's built campaigns for Aerosmith, Lenny Kravitz, Samsung, and Levi's — suddenly finds himself standing in front of a ...

6 Maj 53min

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