John Adams: Rare diseases reveal hard truths about Canada’s healthcare gaps

John Adams: Rare diseases reveal hard truths about Canada’s healthcare gaps

Rare diseases affect only a small number of Canadians, but a lack of adequate testing and treatment reveals some of the key weaknesses in our health care system.

These illnesses – which affect about one in 12 Canadians – raise hard questions about health care costs, access, and fairness, and test how well Canada’s fragmented health governance systems can adapt to new challenges.

For a closer look at Canadian rare disease policy, Macdonald-Laurier Institute Senior Fellow John Adams joins Inside Policy Talks. Adams is a management consultant and one of Canada’s leading advocates for patients with rare diseases. Adams is the co-founder of CanPKU and chair of the Best Medicines Coalition, which represents millions of Canadian patients. His personal journey as a parent and caregiver for his son, who has a rare disease, has left Adams with unique insights on drug access, rare disease policy, and health care reform.

On the podcast, he tells host Shawn Whatley, a physician and senior fellow at MLI, that one of the key steps Canada could take to better serve patients with rare diseases is passing an orphan drug law like the one that exists in the United States. These laws incentivize the development of new drugs for rare diseases that are otherwise unprofitable due to small patient populations.

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(138)

Sylvain Charlebois: Canada's dairy industry in decline

Sylvain Charlebois: Canada's dairy industry in decline

Canada's dairy industry is one of the most protected sectors of the Canadian economy. But is that protection holding the industry back?While Canada's dairy sector has long benefited from policies desi...

21 Aug 52min

Lt.-Col. Joel Maley: Deterrence is cheaper than defence

Lt.-Col. Joel Maley: Deterrence is cheaper than defence

Latvia is home to Canada's largest overseas military deployment, with more than 2,000 members of the Canadian Armed Forces serving on NATO's eastern flank.Why are Canadians there? Why should Canadians...

14 Aug 50min

Rainer Knopff and Ted Morton: Canadian judges ran amok with the Charter

Rainer Knopff and Ted Morton: Canadian judges ran amok with the Charter

Special episode: Peter Copeland, acting director of domestic policy at MLI, sat down last month with eminent Canadian political scientists Rainer Knopff and Ted Morton. 25 years ago Morton and Knopff'...

6 Aug 1h 2min

Carl Trueman: Euthanasia, transgenderism, and transgression

Carl Trueman: Euthanasia, transgenderism, and transgression

By almost every material measure life has become safer, richer, and more convenient... so why do many people seem more anxious, lonely, and unhappy?We often explain this malaise in economic or psychol...

30 Juli 1h 4min

Garry Clement: Foreign actors see Canada as the lane of least resistance

Garry Clement: Foreign actors see Canada as the lane of least resistance

For years Canada seemed to be the more peaceful part of North America. But that narrative is changing.Recently a Toronto police officer was shot while investigating a series of shootings in the city, ...

23 Juli 51min

Rob Henderson: Stigma and expectations will make your life better

Rob Henderson: Stigma and expectations will make your life better

For young men, there used to be “a ton of societal pressure on you to make something of yourself.” That’s one of many positive culture norms that we’ve now lost, says author Rob Henderson.Today, “some...

16 Juli 1h 1min

Christine Van Geyn and Ryan Alford: Canadian courts imagine wild scenarios to avoid punishing criminals

Christine Van Geyn and Ryan Alford: Canadian courts imagine wild scenarios to avoid punishing criminals

Canada’s judges have become “completely divorced from reality” in the reasoning they use to bat down mandatory minimum sentences for serious crimes, says Christine Van Geyn, interim executive director...

9 Juli 49min

Joel Blit: The 3 stages of the AI revolution

Joel Blit: The 3 stages of the AI revolution

Some of the boldest predictions about Artificial Intelligence have forecast that white-collar workers are soon to become obsolete.This comes as rapidly advancing AI appears more and more in our day-to...

25 Juni 1h 5min

Populärt inom Politik & nyheter

aftonbladet-krim
p3-krim
aftonbladet-daily
rss-expressen-dok
svenska-fall
flashback-forever
rss-krimstad
motiv
rss-vad-fan-hande
svd-ledarredaktionen
rss-sanning-konsekvens
rss-krimreportrarna
spar
rss-aftonbladet-krim
fordomspodden
mannen-utan-spar
rss-frandfors-horna
grans
politiken
tv4-nyheterna-story